La historia del resplandor de Ethan

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Diagnóstico: Enfermedad de Coats Esta foto. ESTA FOTO! Si hubiera sabido lo del "resplandor" cuando tomé esta foto. Acabábamos de cambiar la iluminación de nuestra sala de estar la mañana en que tomé las fotos para nuestras tarjetas familiares de Navidad. ¿Por qué el ojo de Ethan tiene este ...

Amber’s Glow Story

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Diagnosis: Retinoblastoma  Amanda and Scott remember noticing a Glow ever so often in their daughter, Amber’s, right eye when she was as little as two weeks old.  “The Glow” would appear much as a glow appears in a cat’s eye, a yellow-greenish iridescent glow within the …

Jacksen’s Glow Story

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Diagnosis: Retinoblastoma  Amanda and her husband Jack welcomed their son into the world on in September of 2017.  Jacksen was a perfectly healthy little boy and Amanda and Jack were happy to start their new family life together in their home of Kauai, Hawaii.  Looking back, Amanda …

Gage’s Glow Story

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Diagnosis: Retinoblastoma  Gage was diagnosed with retinoblastoma in May of 2015. He was two years old at the time when I noticed a weird glow in his right eye. I took him to the doctor’s office three days later and they didn’t know what it was, so they …

Braelyn’s Glow Story

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Diagnosis: Retinoblastoma  In March 2017, our world came crashing down when we were told our sweet 9-month-old daughter, Braelyn, was diagnosed with an eye cancer called retinoblastoma.  We scheduled an appointment with a pediatric ophthalmologist after noticing that her eyes would shake when she tried to …

Cannon’s Glow Story

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Diagnosis: Retinoblastoma Cannon was born on October 1, 2012; perfect, healthy, and immediately spoiled by two older sisters.  We did not notice anything unusual about him, nor detect anything off in pictures until January 2013. I noticed he did not track toys well and while I had “that” feeling …