Arielle’s Glow Story

Diagnosis: Bilateral Retinoblastoma On May 10, 2017, Kristina Luna gave birth to a perfectly healthy little girl she named Arielle.  Arielle passed all the wellness exams in the hospital and was sent home a few days later.  When Arielle was about a week old she started …

Chipper’s Glow Story

Diagnosis: Amblyopia A couple months prior to Chipper’s third birthday we noticed that he would occasionally turn his left eye inward. At first, we thought he was just being silly. This prompted us to look back through his pictures and we were shocked to find several pictures …

River’s Glow Story

Diagnosis: Coloboma Zach & Kati Simmons were sitting in the pediatrician’s clinic with their then four-day old baby girl, River Laine, waiting for her discharge appointment.  River was finally bright-eyed and looked up at the florescent lights – Kati was surprised at what she saw. She …

La historia de Jack

Diagnóstico: Enfermedad de Coats Durante un par de meses, Mike y yo habíamos notado que el ojo derecho de Jack era perezoso a veces. Cuando llevé a Jack y a una de sus hermanas al pediatra para que les hiciera un examen físico a principios de junio de 2015, el pediatra no vio...

Dezmond’s Glow Story

Diagnosis: Familial Exudative Vitreoretinopathy (FEVR) Emily started to notice something may be wrong with her son just weeks after his birth. Dezmond “Dez” was only six weeks old when they noticed both of his eyes were shaking continuously. Alarmed, Emily took him to see his pediatrician. …

Sadie’s Glow Story

Diagnosis: Persistent Fetal Vasculature Sadie was only two months old when her father, Drew, first sensed something may be impacting his daughter’s vision. Sadie’s right eye had a tendency to turn inward, especially when she was sleepy. When sharing his concerns with Sadie’s mother Ashley, who …

La historia de Matthew

Diagnóstico: Enfermedad de Coats El otoño de 2013 fue un momento difícil para Matthew, de 9 años. Finalmente fue operado para corregir una condición que causaba que su pie apuntara hacia adentro. Esta cirugía requirió que Matthew se quedara en casa sin ir a la escuela durante unos meses para recuperarse. Durante esas semanas en casa, su ...

La historia del resplandor de Ethan

Diagnosis: Bilateral Retinoblastoma Natalia Cornejo may know Retinoblastoma better than most anyone. She not only battled Retinoblastoma as a child, but faced the disease head on a second time after her son was given the very same diagnosis. Together they have fought and together they have …

La historia de Jeremías

Diagnóstico: Enfermedad de Coats En diciembre de 2016, la familia Fortner se mudó a Fort Meade, Maryland, donde Jeremiah, de 5 años, comenzó en una nueva clase de jardín de infantes. Solo dos semanas después, llegó a casa con una nota que cambiaría el rumbo de su vida. Jeremiah había fracasado en la escuela ...

Parker’s Glow Story

Diagnosis: Bilateral Retinoblastoma In October 2015, Leslie started to notice a strange glow in her son Parker’s eye during every day activities.  Parker was only 6 months old at the time and Leslie did not know what to think of the Glow that she was noticing.  …