La historia de Jack

Diagnóstico: Enfermedad de Coats Durante un par de meses, Mike y yo habíamos notado que el ojo derecho de Jack era perezoso a veces. Cuando llevé a Jack y a una de sus hermanas al pediatra para que les hiciera un examen físico a principios de junio de 2015, el pediatra no vio...

Dezmond’s Glow Story

Diagnosis: Familial Exudative Vitreoretinopathy (FEVR) Emily started to notice something may be wrong with her son just weeks after his birth. Dezmond “Dez” was only six weeks old when they noticed both of his eyes were shaking continuously. Alarmed, Emily took him to see his pediatrician. …

Sadie’s Glow Story

Diagnosis: Persistent Fetal Vasculature Sadie was only two months old when her father, Drew, first sensed something may be impacting his daughter’s vision. Sadie’s right eye had a tendency to turn inward, especially when she was sleepy. When sharing his concerns with Sadie’s mother Ashley, who …

La historia de Matthew

Diagnóstico: Enfermedad de Coats El otoño de 2013 fue un momento difícil para Matthew, de 9 años. Finalmente fue operado para corregir una condición que causaba que su pie apuntara hacia adentro. Esta cirugía requirió que Matthew se quedara en casa sin ir a la escuela durante unos meses para recuperarse. Durante esas semanas en casa, su ...

La historia del resplandor de Ethan

Diagnosis: Bilateral Retinoblastoma Natalia Cornejo may know Retinoblastoma better than most anyone. She not only battled Retinoblastoma as a child, but faced the disease head on a second time after her son was given the very same diagnosis. Together they have fought and together they have …

La historia de Jeremías

Diagnóstico: Enfermedad de Coats En diciembre de 2016, la familia Fortner se mudó a Fort Meade, Maryland, donde Jeremiah, de 5 años, comenzó en una nueva clase de jardín de infantes. Solo dos semanas después, llegó a casa con una nota que cambiaría el rumbo de su vida. Jeremiah había fracasado en la escuela ...

Parker’s Glow Story

Diagnosis: Bilateral Retinoblastoma In October 2015, Leslie started to notice a strange glow in her son Parker’s eye during every day activities.  Parker was only 6 months old at the time and Leslie did not know what to think of the Glow that she was noticing.  …

La historia del brillo de Jojo

Diagnóstico: Enfermedad de Coats Su vida cambió para siempre el verano de 2014. Jojo, de seis años, fue a un examen ocular de rutina solo para descubrir lo impensable. El Dr. Todd Goodman en Lexington, Tennessee, encontró algo que nunca había visto antes: lo que parecía ser un caso clásico de libro de texto...

Marco’s Glow Story

Diagnosis: Retinoblastoma In 2006, Marco celebrated his 2nd birthday surrounded by family and friends.   Cameras began to flash as he sat in his highchair with a big piece of chocolate cake in front of him. Two of the family members celebrating with us that day were his …

Evalynn’s Glow Story

Diagnosis: Retinoblastoma Evalynn was 10-months-old when her mother, Vanessa, noticed something was “off” with her eye. When Evalynn was sleepy or focusing on something in the distance, Vanessa noticed that Evalynn’s eye would drift off slightly. This “lazy eye” was so subtle, Vanessa seemed to be …