When Paty Montesinos noticed her toddler’s eye drifting and his depth perception faltering, she assumed, like many parents might, that it was something simple. A lazy eye, perhaps a need for glasses. After all, her husband had worn an eye patch as a child, and …
Holland’s Glow Story
When Heather and Sean Henry brought their newborn daughter Holland to her pediatrician for her first well-check at just five days old, they had no idea that visit would set in motion a life-changing journey. Heather noticed the doctor lingering a bit longer than usual …
Tapas’ Glow Story
For Dipak Khatri, fatherhood is a commitment not just to his own children, but to every child who might otherwise be left behind. Speaking from his home in the surunga town of Nepal’s Jhapa district—just 14 hours by road from Kathmandu and near the Indian …
Zoe’s Glow Story
A Mother’s Journey: Nwabisa Monye’s Fight Against Retinoblastoma Nwabisa Monye, a 36-year-old mother from Johannesburg, South Africa, never imagined that a seemingly harmless glow in her daughter’s eye would lead to a life-altering diagnosis. Her daughter, Zoe, now 14, was diagnosed with retinoblastoma, a rare …
Aniyah’s Glow Story
Battling Retinoblastoma with Faith and Resilience. In a world where early diagnosis can mean the difference between life and death, Joy Marangu’s story is a testament to the power of perseverance, faith, and the importance of raising awareness about rare medical conditions. Her daughter’s battle …
La historia de Grace
Kanteera and her husband, Erwin, were thrilled to welcome their first born to the world in January of 2023. Their little girl, Grace, was born completely healthy and without complication. The first few months of Grace’s life she hit every developmental milestone and was thriving. …
Samuel’s Glow story
as written by his mother, Amanda Devaney Samuel was a very healthy little boy, never having as much as an ear infection for the first three years of his life. But one day right before Christmas of 2022, his father and I began to notice …
Harmonee’s Retinoblastoma Journey,
written by her mother, Randi For the first two years of Harmonee’s life in Dassel, Minnesota, she was the picture of health. She met all of her milestones and had a healthy exam at every well check. She had a thorough two year check in …
Austin’s Glow Story
One day, the sun shone through the living room window directly onto Austin’s 4-year-old face. With the light hitting his eye in just the right way, a friend noticed she could “see through” Austin’s eye when looking at him from the side. I too noticed …
Liz and Aria’s RB Survival Stories
In 2002, when Liz Nagel was just six months old, her mother and family began to notice something strange in the photos taken of her daughter. Liz’s left pupil had a strange reflection, almost a glow. After months of it not going away, her mom …