Lucas’s Glow Story

Diagnosis: PFV Kaitlin had a feeling that Lucas was going to change her life when he refused to turn from the breech position, and she had to have a cesarean section. When he finally entered the world, he weighed in at a whopping 11 pounds!  …

Jakov’s Glow Story

Diagnosis: PHPV Jakov was born on January 13, 2022 and was discharged from the maternity ward as a perfectly healthy newborn. But, like any mother, Nikolina soon noticed that the left eye of her baby was not the same as the right eye, and that …

Ryu’s Glow Story

Diagnosis: Retinoblastoma Ryu is only ten years old but has already fought a battle most will never face in a lifetime. When Ryu was only six months old his mother, Agatha, sensed there was something not quite right. Ryu’s left eye would periodically drift. Agatha …

Cody’s Glow Story

Diagnosis: Bilateral Cataracts & Bilateral PHPV When Cody was two months old Ana noticed something was not right with her son, Cody’s, eye. It looked a little smaller than his left eye and when she took a flash photo of him for a passport to …

Julia’s Glow Story

Carme Julià Ferré, a professor in the Department of Computer Science and Mathematics at la Universitat Rovira i Virgili in Tarragona, Spain  is the extraordinary mother of two beautiful daughters, Anna and Julia. When Julia was eight months old, she was diagnosed with Retinoblastoma. Fortunately …

Isla’s Glow Story

Diagnosis: Retinoblastoma Our daughter, Isla was diagnosed with bilateral heritable Retinoblastoma at 10 weeks of age. I first mentioned Isla’s eyes to our pediatrician while still in hospital after giving birth. I was worried the way her eyes were tracking seemed irregular and she often …

Maxim’s Glow Story

Diagnosis:  Coats Disease  Annie and her husband, Alain say that their now ten-year-old son Maxim is very inquisitive about life.  He is a deep thinker, an investigator and a bit of a young scientist.  So when Maxim came to Annie at the age of eight …

Oskar’s Glow Story

Diagnosis: Amblyopia Das ist Oskar. Er ist 3 1/2 Jahre alt und hat Amblyopie, Schwachsichtigkeit. Es betrifft sein linkes Auge. Auf diesem hat er aktuell nur 10% Sehkraft und ca. 7 Dioptrien. Für uns hat er es seit dem 28.3.22, vermutlich hat er es schon …

Kinley’s Glow Story

Diagnosis: Retinoblastoma Kelly Morton developed a strabismus (lazy eye) at a young age. She was treated with patching therapy for over a year and wore glasses to correct her misalignment.  These measures were a complete success and she had no further visual issues. Later in …

Rocky’s Glow Story

Diagnosis: Retinoblastoma I would like to introduce our story with a little background.  I am a 38-year-old retinoblastoma survivor. In 1984, my mom was able to capture the glow in my right eye with flash photography.  This Glow led her to discover my cancer, and …