Joey’s Glow Story

Diagnosis: Coats’ Disease In December 2020, Mike and Pam took their son Joey for his six year well visit.  During the exam, the doctor noticed that Joey may need glasses and sent them to see an ophthalmologist.  Not alarmed by this news, the family waited …

Fariha’s Glow Story

Diagnosis: Retinoblastoma As many in the KnowTheGlow community have come to learn, it is vitally important that you have a strong support system around you when you have a child that has been given a difficult diagnosis. Thanks to the support and compassion of Farheen …

Nixon’s Glow Story

Diagnosis: Amblyopia Kathy kept a very close watch on her two boys, always looking for signs of any visual issues.  Kathy had been treated when she was five years old for an astigmatism that led to amblyopia.  She wore glasses, and with patching therapy, was …

Pooh’s Glow Story

Diagnosis: Retinoblastoma It was a late afternoon nearly four years ago in Hanoi when Tanya found herself sitting by the window holding her 3-month-old baby girl.  In that light, she noticed a glimmering glow in her baby’s eye. Tanya’s mother is a nurse and so …

Santiago’s Glow Story

Diagnosis: Retinoblastoma English This month, KnowTheGlow Co-Founder Megan Webber sat down to speak with Amanda Hernandez, a Venezuelan-Canadian mother of a Retinoblastoma survivor. Amanda, her husband, and their oldest son moved from Venezuela to Canada in 2012. In 2015, their youngest son, Santiago, was born.  …

Fiona’s Glow Story

In the year 1934, Fiona Fairlie was only 18 months old.  Her father was playing with her one afternoon and made a discovery that would forever change her life.  There was not much information distributed in those days about childhood cancer, especially not about the …

Sophia’s Glow Story

Diagnosis: Retinoblastoma Sophia’s “Glow” was first noticed as photographs were being uploaded from our camera to the computer. She was three months old, but some of the photos had been taken a month or more prior. Photo after photo revealed a pearly white glow in her …

Rifqi’s Glow Story

Diagnosis: Coats’ Disease Nurul and Rifqi live in Jakarta in beautiful Indonesia. Nurul says her son Rifqi was a very active, creative and inquisitive little boy. Growing up in Indonesia, Rifqi loved to spend his time playing video games, drawing anime and creating his own superhero …

Aakanksha’s Glow Story

Diagnosis: Retinoblastoma Introduction:KnowTheGlow had the opportunity to speak with Anita and Aakanksha Gupta last month—a mother and a daughter who share a common diagnosis of retinoblastoma and triumphant recovery. As you’ll read in Aakanksha’s own words, her surgery was slightly delayed due to the Covid-19 but …

Luca’s Glow Story

Diagnosis: Familial Exudative Vitreoretinopathy Meg and Stew were very concerned to see a white reflex in the pupil of their two year old son Luca’s eye after they took photos using the flash. They were well aware that this Glow can potentially be a sign of …