Max is now twelve and was diagnosed just after his 2nd birthday so his journey spans nearly a decade! When we first started the process of diagnosis we saw a specialist, Dr. Hildebrand at The Royal Berkshire Hospital in Reading, UK. He was so lovely …
Tiago and Daiana Leifert’s Fight Against Childhood Cancer: A Campaign for Awareness
Tiago Leifert, a nationally acclaimed Brazilian journalist and presenter, and his family have embarked on a remarkable journey to raise awareness about a condition that impacts children across Brazil – retinoblastoma. In a conversation with KnowTheGlow Co-Founder Megan Webber, Tiago shared the story of his …
Amir Porter’s Glow Story
Chantal Porter says the first time she considered her 3 year old son, Amir, may have a visual issue was the summer of 2023 when her 7 year old daughter told her that she was noticing a “Glow” in her brother’s eye. At the time, …
Macy Latif’s Glow Story
Jennifer Villamar had what she calls a “traumatic” pregnancy. Developing Hyperemesis Gravidarum, she suffered extreme, persistent nausea and vomiting that led to significant, life threatening weight loss. Jennifer spent over 13 weeks in the hospital trying to control her condition with a variety of medications. …
Colter Dammann’s Glow Story
Written by Matt & Keely Dammann (Colter’s parents) Around Colter’s first birthday we started to notice the iris of his right eye was a darker shade of blue. As the summer went on, we noticed it continue to darken compared to his left eye. Initially, …
Bella’s Glow Story
Diagnosis: Retinoblastoma Bella O’Neill was just 3 when we took her to Specsavers for a lazy eye. Being a young mum who would have thought 3 weeks later we would find ourselves at The Royal London Hospital seeing Dr. Reddy, hearing words that kept repeating …
Aduduh Faeren Jay’s Glow Story
In an unforgettably heartfelt conversation between Megan Webber, co-founder of KnowTheGlow, and Aduduh Faeren Jay, a resilient individual hailing from the village of Sati Ikov in the Benue state of Nigeria, a profound narrative of struggle and hope unfolds. Aduduh’s story begins with his diagnosis …
Tiago and Daiana Leifert’s Fight Against Childhood Cancer: A Campaign for Awareness
Tiago Leifert, a nationally acclaimed Brazilian journalist and presenter, and his family have embarked on a remarkable journey to raise awareness about a condition that impacts children across Brazil – retinoblastoma. In a conversation with KnowTheGlow Co-Founder Megan Webber, Tiago shared the story of his …
Coddi’s Glow Story
Diagnosis: Retinoblastoma In the picturesque city of Penang, Malaysia, a worried mother named Karrinzz (Karyn) Wong found herself facing an uncertain future when her two-year-old son, Coddi, was given a tentative diagnosis of retinoblastoma. The journey began when Karrinzz noticed an unusual glow in Coddi’s …
George’s Glow Story
Diagnosis: Retinoblastoma George’s Inspirational Journey: Battling Retinoblastoma with Courage and Hope In May of 2023, the life of young George Walsh took an unexpected turn when a peculiar white glare appeared in his eye during a family photo. This seemingly innocuous moment led to a …