Hi, I am Tina, a retinoblastoma survivor of 42 years. When I was six months old, my mother noticed that my eyes would glow like a cat’s when she would lay me down at night. She mentioned this at my 6-month check-up, where they found …
Carla Soto Vargas: Overcoming Challenges and Advocating for Childhood Cancer Support in Chile
At the age of four, Carla Soto Vargas was diagnosed with Class 2B Unilateral Retinoblastoma, a rare form of eye cancer. Her mother’s keen observation of a flash photograph, which revealed a peculiar glow, led to the timely detection of the tumor. The journey through …
A Family’s Journey with Coats’ Disease: Finding Support and Making a Difference
When a family receives a medical diagnosis that changes their lives forever, their journey becomes one of resilience, determination, and hope. The Richardson family, residing in Nashville, Tennessee, found themselves facing such a situation when their youngest child, Kip, was diagnosed with Coats’ Disease at …
Dane’s Glow Story
Dane’s story with a unilateral congenital cataract Our story began when Dane was six months old. I took him to his general practitioner for hisregular checkup and to receive his immunisations. The visit was all very routine until thedoctor checked Dane’s eyes. She said that …
Osteen’s Glow Story
In a candid interview, Dr. Kahaki Kimani, a seasoned pediatric ophthalmologist and senior lecturer at the Department of Ophthalmology, University of Nairobi, delved into the touching journey of Tabitha Murigi, who discovered her son Osteen’s retinoblastoma. Tabitha, married to Samuel Kagiri and a mother of …
अल्फी की चमक कहानी
Diagnosis: Norrie Disease KTG recently had the pleasure of meeting Kelly Leggett, Co-Founder of The Norrie DiseaseFoundation in the UK. Kelly graciously shared her family’s extraordinary journey, whichultimately led to the establishment of this nonprofit organization. Norrie Disease, a conditioncommonly first associated with a glow-like …
A Journey of Resilience and Love: Andrea and Carmen’s Story of Overcoming Retinoblastoma
Diagnosis: retinoblastoma In the vibrant city of Madrid, Spain, a mother-daughter duo, Carmen and Andrea, recently shared their remarkable journey navigating the challenges of retinoblastoma. Retinoblastoma is a rare form of eye cancer that threatened Andrea’s vision at a very young age. Their inspiring story …
Mrs. Sunshine: A Standout Monocular Vision Advocate who refuses to Blend In.
Mrs. Sunshine’s popularity on social media is a testament to her unwavering spirit and dedication to living life to the fullest. Through her content about her monocular vision, prosthetic eye, education, and fitness journey, she has become a beacon of hope and inspiration for people …
Brook’s Glow Story
Diagnosis: Retinoblastoma A Mother’s Determination: Catching Retinoblastoma on Film Being a vigilant parent often involves observing and documenting unusual occurrences in a child’s behavior or appearance. This is exactly what one mother did when she noticed a peculiar reflection in her son’s eye. Little did …
Katie’s Glow Story
Diagnosis: Retinoblastoma Katie Elliott: A Model of Resilience and Inspiration in the Face of Retinoblastoma Katie Elliott, a remarkable young woman hailing from Scotland, has grown to be a symbol of resilience and determination in the fight against retinoblastoma, a rare form of childhood eye …