Clelia’s Glow Story

Story in English – Clelia’s Retinoblastoma as told by her mother: Clelia was born in Naples, Italy on a very hot night in June of 2022.  To this day I remember how beautiful her eyes were, they were as blue as the sea and the …

Benny’s Glow Story

When Bennett (Benny) was just three months old, his mother, Sarah, noticed that he would not turn his head to the left.  More than this, his movements seemed a bit abnormal, she describes them as “jerky”.   These two symptoms were enough for Sarah to …

Michael Omotayo’s Glow Story

In a world where challenges can often define us, Michael Omotayo stands as a beacon of resilience and empowerment. From a young age, Michael has faced and conquered obstacles, shaping his experiences into lessons that inspire others to persevere and thrive. As a personal trainer …

Vicente’s Glow Story

We were awaiting our third child, Vicente, with great excitement and were thrilled when he began to open his eyes!  At two months of age though I started to see a “twinkle” in the eye that was very particular and I’d not seen it in …

Aurelio’s Glow Story

Diagnosis: Retinoblastoma My name is Jimena Garrido.  My husband José and I live in Lima, Peru and married in 2017.  We wished for children but decided to wait a few years to start our family. We were thrilled when our first child, Aurelio, was born …

Oliver’s Glow Story

“It was God’s divine intervention”.This is how Kristin Bell begins telling her son Oliver’s medical journey. In October of 2021, Oliver was two years old, when Kristin started to notice a white “glow” in his eye. She would only notice it when he would turn …

Jude’s Glow Story

Melissa Kearns and her husband live in New York and were beyond excited to find themselves pregnant after spending five years struggling to have a child.  Jude was born in April of 2021 and was a beautiful bouncing baby boy but not long after he …

Max Ager’s Glow Story

Max is now twelve and was diagnosed just after his 2nd birthday so his journey spans nearly a decade! When we first started the process of diagnosis we saw a specialist,  Dr. Hildebrand at The Royal Berkshire Hospital in Reading, UK. He was so lovely …