Dezmond’s Glow Story

Diagnosis: Familial Exudative Vitreoretinopathy (FEVR) Emily started to notice something may be wrong with her son just weeks after his birth. Dezmond “Dez” was only six weeks old when they noticed both of his eyes were shaking continuously. Alarmed, Emily took him to see his pediatrician. …

Stanley’s Glow Story

Diagnosis: FEVR Stanley was born on May 15, 2014.  He was a very healthy little boy, but had some “quirky” behaviors that meant nothing at the time to his mother, Jessica.  But looking back, Jessica realizes these may have been signs of the vision issues that …