Jack’s Glow Story

Diagnosis: Coats Disease For a couple months, Mike and I had been noticing that Jack’s right eye was lazy at times.  When I took Jack and one of his sisters to the pediatrician for a physical at the beginning of June 2015, the pediatrician didn’t see …

Dezmond’s Glow Story

Diagnosis: Familial Exudative Vitreoretinopathy (FEVR) Emily started to notice something may be wrong with her son just weeks after his birth. Dezmond “Dez” was only six weeks old when they noticed both of his eyes were shaking continuously. Alarmed, Emily took him to see his pediatrician. …

Sadie’s Glow Story

Diagnosis: Persistent Fetal Vasculature Sadie was only two months old when her father, Drew, first sensed something may be impacting his daughter’s vision. Sadie’s right eye had a tendency to turn inward, especially when she was sleepy. When sharing his concerns with Sadie’s mother Ashley, who …

Matthew’s Glow Story

Diagnosis: Coats Disease Fall 2013 was a challenging time for 9-year-old Matthew. He was finally having surgery to correct a condition that caused his foot to point inward. This surgery required Matthew to stay home from school for a few months to recover. During those weeks at home, his …

Ethan’s Glow Story

Diagnosis: Bilateral Retinoblastoma Natalia Cornejo may know Retinoblastoma better than most anyone. She not only battled Retinoblastoma as a child, but faced the disease head on a second time after her son was given the very same diagnosis. Together they have fought and together they have …

Jeremiah’s Story

Diagnosis: Coats’ Disease In December 2016, the Fortner family moved to Fort Meade, Md., where 5-year-old Jeremiah started in a new kindergarten class. Just two weeks later, he came home with a note that would change the direction of his life. Jeremiah had failed the school …

Parker’s Glow Story

Diagnosis: Bilateral Retinoblastoma In October 2015, Leslie started to notice a strange glow in her son Parker’s eye during every day activities.  Parker was only 6 months old at the time and Leslie did not know what to think of the Glow that she was noticing.  …

Jojo’s Glow Story

Diagnosis: Coats’ Disease His life was forever changed the summer of 2014. Six-year old Jojo went for a routine eye exam only to discover the unthinkable. Dr. Todd Goodman in Lexington, Tenn., found something he had never seen before—what seemed to be a classic textbook case …

Marco’s Glow Story

Diagnosis: Retinoblastoma In 2006, Marco celebrated his 2nd birthday surrounded by family and friends.   Cameras began to flash as he sat in his highchair with a big piece of chocolate cake in front of him. Two of the family members celebrating with us that day were his …

Evalynn’s Glow Story

Diagnosis: Retinoblastoma Evalynn was 10-months-old when her mother, Vanessa, noticed something was “off” with her eye. When Evalynn was sleepy or focusing on something in the distance, Vanessa noticed that Evalynn’s eye would drift off slightly. This “lazy eye” was so subtle, Vanessa seemed to be …