La historia de Rifqi

himherdigital Historias de la luz

Diagnóstico: Enfermedad de Coats Nurul y Rifqi viven en Yakarta, en la bella Indonesia. Nurul dice que su hijo Rifqi era un niño muy activo, creativo y curioso. Mientras crecía en Indonesia, a Rifqi le encantaba pasar el tiempo jugando a videojuegos, dibujando anime y creando su propio superhéroe ...

La historia de Aakanksha

himherdigital Historias de la luz

Diagnóstico: Retinoblastoma Introducción:KnowTheGlow tuvo la oportunidad de hablar con Anita y Aakanksha Gupta el mes pasado: una madre y una hija que comparten un diagnóstico común de retinoblastoma y una recuperación triunfal. Como leerá en las propias palabras de Aakanksha, su operación se retrasó ligeramente debido a la Covid-19, pero ...

La historia de Cameron

himherdigital Historias de la luz

Diagnóstico: Enfermedad de Coats Maggie recuerda la primera vez que vio "el brillo" en el ojo de su hijo de tres años, Cameron. Estaba en una habitación poco iluminada dándole un baño. Él la miró y por un segundo ella notó un destello en ...

Calvin’s Glow Story

himherdigital Historias de la luz

Diagnosis: Ocular Melanoma Kristy was not surprised when she received the note from her son, Calvin’s, school nurse stating that he had failed his vision test.   After all, both she and her husband wear glasses.  Now that Cal was 13, she assumed he would just …

Kay-La’s Glow Story

himherdigital Historias de la luz

Diagnosis: Retinoblastoma Kay-La Ann says she is forever grateful to her Uncle and family’s intuition.  She was only 5 months old when they noticed a strange Glow in Kay-La’s eyes while the family was moving her Uncle into a new home. After this was brought to …

Walker’s Glow Story

himherdigital Historias de la luz

Diagnosis: Retinoblastoma This is our hero, Walker. He is currently twenty-one months old. Walker was born with two congenital heart defects, TAPVR & ASD, and had open heart surgery at only six weeks of age. Since Walker’s repair, he has had clear echos and we are …

Lachlan’s Glow Story

himherdigital Historias de la luz

Diagnosis: Amblyopia During December of 2019 we started to notice that our two and a half year old son Lachlan’s eye had a slight turn. We didn’t think too much of this and decided to just watch it until after the Christmas holiday.  But in January, …

Sophie’s Glow Story

himherdigital Historias de la luz

Diagnosis: Retinoblastoma I was only 21 months old when my family was spending our last weekend of summer at our house in the Hamptons for Labor Day Weekend of 1997.  Over that weekend my mom started to notice a silver flash in my right pupil. The …