Original Article: https://vgradu.hr/uz-noin-kaputic-i-know-the-glow-organizaciju-educiramo-se-o-rijetkog-bolesti/?fbclid=IwAR1ey7DFqCmeSP45Q0xmezRKxp-YEvddrtXSU6pwCc3nbzPX1nawbXy-gmY English translation Have you heard of Know the Glow, a global nonprofit leader who aims to raise awareness of a rare disease associated with blindness. By the way, the citizens of Velika Gorica have recently encountered a story that has rarely left …
All 3 of the ND Award Winners This Year Were KTG Student Interns!
The Boler-Parseghian Center for Rare and Neglected Diseases has selected Camey Calzolano, ND ’22, Adviti Bali, ND ’23, and Bailey Perczak, ND’22 as the three joint winners of the 2022 Megan K. Crowley Award for Patient Advocacy and the John M. and Mary Jo Boler Rare Disease Research Award. The award recognizes the outstanding combined …
Interview with Maria Arce Moreira
Maria Arce Moreira, the Executive Director for VOSH/International (Volunteer Optometric Services to Humanity) is neither an optometrist nor a health care specialist, but she has always worked with global networks. Maria gravitates towards collaboration because she knows that if you connect people, you inevitably have …
Rocky’s Glow Story
Diagnosis: Retinoblastoma I would like to introduce our story with a little background. I am a 38-year-old retinoblastoma survivor. In 1984, my mom was able to capture the glow in my right eye with flash photography. This Glow led her to discover my cancer, and …
Thea’s Glow Story
Diagnosis: Retinoblastoma My name is Jonathan Smith. My family and I live in Brisbane, Australia. I am the proud father of a Retinoblastoma warrior – Theadora. I am honored to be invited by “Know the Glow” to share our story, especially because the information provided …
Eleanor’s Glow Story
Diagnosis: Retinoblastoma Our journey is one of perspective, persistence, hope and gratitude. This is our story. Our first child, Eloise, was born in October of 2013 – a tiny bundle who loved to be swaddled and rocked. Just after her first birthday, we began noticing …
Noa’s Glow Story
Diagnosis: Coats Disease Ana Sebrek is no different than any other mother trying to protect her child. “If I could bubble wrap my son, plus goggles and plus a helmet, I would!” she told Megan Webber, Co-Founder of KnowTheGlow. As Megan has learned from speaking …
Interview with Dr. Gary Mercado
Megan Webber, Co-Founder of KnowTheGlow, was very fortunate to capture Dr. Gary Mercado’s full attention last week as he was managing through five days of quarantine in Manila after visiting family in America. Even though struggling with jet lag and a 14 hour time change, …
Interview with Dr. Mae Dolendo
In her own words, Dr. Mae Dolendo, or “Doc Mae” as she is known amongst her patients and peers, stresses that you must be tenacious when it comes to building a team of dedicated doctors, nurses, and health care providers to care for the pediatric …
Rachel Mayta’s Glow Story
Diagnosis: Retinoblastoma We at Know the Glow had the pleasure of speaking with Rachel Mayta. Rachel is a 31 year old Retinoblastoma survivor who bursts with energy, joy and positivity. She is bound and determined to reach others who are navigating the world with one …