Diagnosis: Retinoblastoma Our daughter, Isla was diagnosed with bilateral heritable Retinoblastoma at 10 weeks of age. I first mentioned Isla’s eyes to our pediatrician while still in hospital after giving birth. I was worried the way her eyes were tracking seemed irregular and she often …
Diagnosis: Coats Disease Annie and her husband, Alain say that their now ten-year-old son Maxim is very inquisitive about life. He is a deep thinker, an investigator and a bit of a young scientist. So when Maxim came to Annie at the age of eight …
Diagnosis: Amblyopia Das ist Oskar. Er ist 3 1/2 Jahre alt und hat Amblyopie, Schwachsichtigkeit. Es betrifft sein linkes Auge. Auf diesem hat er aktuell nur 10% Sehkraft und ca. 7 Dioptrien. Für uns hat er es seit dem 28.3.22, vermutlich hat er es schon …
Albert Einstein famously said “In the middle of difficulty lies opportunity.” It is this quote that came to mind as I listened to Megan Webber, Co-Founder of KnowtheGlow, speak with Dr. Susan Lewallen, ophthalmologist, advocate for global eye care, co-founder of the Kilimanjaro Center for …
“Know About The Glow” was the phrase given by Dr. A. Linn Murphree to the Co-Founders of KnowTheGlow when we first began in 2010 to assist us in our efforts to find children at risk of retinoblastoma and other leukocoria related blinding diseases through finding …
Diagnosis: Retinoblastoma Kelly Morton developed a strabismus (lazy eye) at a young age. She was treated with patching therapy for over a year and wore glasses to correct her misalignment. These measures were a complete success and she had no further visual issues. Later in …
Original Article: https://vgradu.hr/uz-noin-kaputic-i-know-the-glow-organizaciju-educiramo-se-o-rijetkog-bolesti/?fbclid=IwAR1ey7DFqCmeSP45Q0xmezRKxp-YEvddrtXSU6pwCc3nbzPX1nawbXy-gmY English translation Have you heard of Know the Glow, a global nonprofit leader who aims to raise awareness of a rare disease associated with blindness. By the way, the citizens of Velika Gorica have recently encountered a story that has rarely left …
The Boler-Parseghian Center for Rare and Neglected Diseases has selected Camey Calzolano, ND ’22, Adviti Bali, ND ’23, and Bailey Perczak, ND’22 as the three joint winners of the 2022 Megan K. Crowley Award for Patient Advocacy and the John M. and Mary Jo Boler Rare Disease Research Award. The award recognizes the outstanding combined …
Maria Arce Moreira, the Executive Director for VOSH/International (Volunteer Optometric Services to Humanity) is neither an optometrist nor a health care specialist, but she has always worked with global networks. Maria gravitates towards collaboration because she knows that if you connect people, you inevitably have …
Diagnosis: Retinoblastoma I would like to introduce our story with a little background. I am a 38-year-old retinoblastoma survivor. In 1984, my mom was able to capture the glow in my right eye with flash photography. This Glow led her to discover my cancer, and …
