Noa’s Glow Story

Diagnosis: Coats Disease Ana Sebrek is no different than any other mother trying to protect her child. “If I could bubble wrap my son, plus goggles and plus a helmet, I would!” she told Megan Webber, Co-Founder of KnowTheGlow. As Megan has learned from  speaking …

Eli’s Glow Story

Diagnosis: Coats’ Disease When Eli was just seven months old he began to exhibit persistent high fevers.  These fevers became very alarming to his parents, Christina and Shawn Gill.   They were common and could reach as high as 107 degrees!  Eli was also sleeping …

Joey’s Glow Story

Diagnosis: Coats’ Disease In December 2020, Mike and Pam took their son Joey for his six year well visit.  During the exam, the doctor noticed that Joey may need glasses and sent them to see an ophthalmologist.  Not alarmed by this news, the family waited …

Rifqi’s Glow Story

Diagnosis: Coats’ Disease Nurul and Rifqi live in Jakarta in beautiful Indonesia. Nurul says her son Rifqi was a very active, creative and inquisitive little boy. Growing up in Indonesia, Rifqi loved to spend his time playing video games, drawing anime and creating his own superhero …

Cameron’s Glow Story

Diagnosis: Coats’ Disease Maggie remembers the very first time she saw “the Glow” in her three year old son, Cameron’s, eye.  She was in a dimly lit room giving him a bath.  He looked up at her and for a second she noticed a flash in …

Superhero Diaz’s Glow Story

Diagnosis: Coats’ Disease It all started back in 2004, when my son Diaz was 4 years old. He was playing with his cousins at my sister’s house and my sister noticed that he was squinting. I didn’t think much about it and scheduled an appointment at …

Ethan’s Glow Story

Diagnosis: Coats’ Disease  This picture.  THIS PICTURE! If only I had known about “the glow” when I took this picture.  We had just changed the lighting in our living room the morning I took pictures for our family Christmas cards.  Why does Ethan’s eye have this …

Miguel’s Glow Story

Diagnosis: Coats’ Disease  Tina had no idea about any dangerous eye conditions in children nor did she know about the “glow” (leukocoria) until she posted a video and picture of her son, Miguel, on her Facebook page back in March of 2016. Her close friend messaged …

Izayah’s Glow Story

Diagnosis: Coats’ Disease  Samantha and her husband Luis decided to take their young family on a trip last May.  Their youngest child, Izayah, was almost 1 1/2 years old. Samantha took many photos of her children and proudly shared them on Instagram and Facebook.  Shortly after …

Kaydn’s Glow Story

Diagnosis: Coats’ Disease Manda and her husband Bryan welcomed their fourth child, Kaydn, into the world in May of 2018.  Kaydn was born six weeks early and spent his first nine days in the neonatal intensive care unit in Sioux Falls SD.  Despite being born premature, …