Grace’s Glow Story

Diagnosis: Coats’ Disease Grace’s mother, Stacey, knew something was not right when her daughter was born.  Stacey voiced these concerns with different health care providers on numerous occasions.  Time and time again, Stacey was told that everything was fine with Grace and to give her concerns …

Mikey’s Glow Story

Diagnosis: Coats’ Disease When Michael, “Mikey,” was born, a doctor checked his eyes, and everything looked perfect. In the coming months however, his mother, Dana, found something to be just a little “off” in Mikey’s photos. She could not describe exactly what she noticed, but her …

Leopoldo’s Glow Story

Diagnosis: Coats’ Disease Leopoldo was a very happy and healthy little boy.  He hit all his developmental milestones and had perfect checks at his pediatricians office.  However, when he was about three years old Leo’s mother, Kristal, started to noticed that he was touching one of …

Dominic’s Glow Story

Diagnosis: Coats’ Disease Lindsey was not aware of the dangers that could be associated with “The Glow” in flash photography.  It was Lindsey’s sister, Olivia, who first saw a post by Know The Glow® on Facebook explaining what this golden reflection could indicate.  Olivia forwarded the post …

Megan and Ben’s Story

Diagnosis: Coats’ Disease Uploading family photos is something we all do – posting and sharing across our social platforms or saving to our phones for easy access. This is especially true for parents of young children, capturing milestone moments of those first years of life. Normally, we …

Alfie’s Glow Story

Diagnosis: Coats’ Disease Alfie was diagnosed on the 09/30/15 with Coats’ Disease at the Royal London Hospital, here’s how I noticed it: At the end of August 2015, I noticed a photo taken at my eldest son’s wedding where there was a “Glow” in my youngest …

Landon’s Glow Story

Diagnosis: Coats’ Disease The Friday after Thanksgiving 2015, I put my 2 boys (ages 4 and 2) in matching Christmas pajamas and took their picture in front of the Christmas tree. I usually do not use a flash, but somehow it was on this time and …

Isaiah’s Story

Diagnosis: Coats’ Disease My son, Isaiah, was diagnosed with Coats’ Disease in his left eye when he was 5-years-old. It all started with a picture taken from my best friend’s cell phone camera. She took a picture of Isaiah and her daughter, and she showed me …

Shannon Rose’s Glow Story

Diagnosis: Coats’ Disease & Neovascular Glaucoma When Shannon was just two years old, her mother Rosemary started to notice that her eye was drifting. Rosemary was concerned enough to bring Shannon to an ophthalmologist for a thorough exam.  The ophthalmologist discovered Shannon had 20/200 vision in that …