Mikey’s Glow Story

Diagnosis: Coats’ Disease When Michael, “Mikey,” was born, a doctor checked his eyes, and everything looked perfect. In the coming months however, his mother, Dana, found something to be just a little “off” in Mikey’s photos. She could not describe exactly what she noticed, but her …

Thomas’ Glow Story

Diagnosis: Retinoblastoma The Cola Bottle Diagnostic Tool By Pat Trotta I was astounded when I found out about Know The Glow and how social media is saving lives through digital photography. Finally, we have something we can do to help children born with Retinoblastoma and other childhood …

Gracie’s Glow Story

Diagnosis: Retinoblastoma Gracie is 2-years-old. I saw a glow in her eye, but it wasn’t all the time, so I took her to a doctor on May 16, 2016. The doctor referred us to an optometrist, and later that same day, she was diagnosed with Retinoblastoma. …

Cameron’s Glow Story

Diagnosis: Norrie Disease Cameron was born at 39 weeks 6 days, weighing a healthy 8 pounds 4 ounces, and he was ready to come home hours after his birth. For the first six weeks, he had his days and nights around the wrong way and would …

Leopoldo’s Glow Story

Diagnosis: Coats’ Disease Leopoldo was a very happy and healthy little boy.  He hit all his developmental milestones and had perfect checks at his pediatricians office.  However, when he was about three years old Leo’s mother, Kristal, started to noticed that he was touching one of …

Owen’s Glow Story

Diagnosis: Retinoblastoma Owen is a second-generation Retinoblastoma fighter. We knew that he would need to be screened from birth, so we scheduled an ophthalmology appointment before he was born. We did a blood draw at our first appointment and met with a genetic counselor who was …

Aiden’s Glow Story

Diagnosis: Retinoblastoma It was Christmas Eve 2008; Aiden had just celebrated his 3rd birthday two weeks prior. Tim, Aiden’s father, was reading the newspaper and came across an article on Retinoblastoma and how a young child had been diagnosed by having the “white-eye reflection” picked up in …

Aubrey’s Glow Story

Diagnosis: Amblyopia Aubrey was only 11 months old when her mother, Jennifer, noticed an over-growth in the white portion of her eye. Soon after, Jennifer also noticed that Aubrey’s eye turned slightly inward. Concerned, Jennifer took Aubrey to an ophthalmologist. This doctor dismissed her concerns and said that …

Hadley’s Glow Story

Diagnosis: Retinoblastoma When Hadley was born, her mom and dad noticed some issues with the color of her right eye. Concerned, they mentioned it to their pediatrician who reassured them it was nothing to worry about. Over time, however, the issue seemed to be getting worse. …

Lizzie’s Glow Story

Diagnosis: Retinoblastoma In the days leading up to Lizzie’s three-month checkup, her mother, Sarah, began to have concerns over what appeared to be a lazy eye. Sarah felt even though Lizzie was a newborn, her eye should have been tracking better than it was. Sarah also …