Gage’s Glow Story

Diagnosis: Retinoblastoma  Gage was diagnosed with retinoblastoma in May of 2015. He was two years old at the time when I noticed a weird glow in his right eye. I took him to the doctor’s office three days later and they didn’t know what it was, so they …

Braelyn’s Glow Story

Diagnosis: Retinoblastoma  In March 2017, our world came crashing down when we were told our sweet 9-month-old daughter, Braelyn, was diagnosed with an eye cancer called retinoblastoma.  We scheduled an appointment with a pediatric ophthalmologist after noticing that her eyes would shake when she tried to …

Miguel’s Glow Story

Diagnosis: Coats’ Disease  Tina had no idea about any dangerous eye conditions in children nor did she know about the “glow” (leukocoria) until she posted a video and picture of her son, Miguel, on her Facebook page back in March of 2016. Her close friend messaged …

Cannon’s Glow Story

Diagnosis: Retinoblastoma Cannon was born on October 1, 2012; perfect, healthy, and immediately spoiled by two older sisters.  We did not notice anything unusual about him, nor detect anything off in pictures until January 2013. I noticed he did not track toys well and while I had “that” feeling …

Nolan Desmond’s Glow Story

Diagnosis: Retinoblastoma Nolan was born in February 2016, a very smiley, active, and happy baby. However, when he was just a few months old, Nolan’s parents, Matt and Brittany, began to notice that his eyes would occasionally roll backwards. He would also cry out as if …

Jayden’s Glow Story

Diagnosis: Retinoblastoma Jayden’s mother, Kristen, says that he was a healthy and active toddler. However, from very early on she noticed a consistent glow in his right eye in the flash photos she took of him. She found the Glow strange but did not know that it could …

Hadley’s Glow Story

Diagnosis: Bilateral Retinoblastoma Jennifer and Grant’s second daughter, Hadley, was a healthy and very happy baby.  However, when Hadley turned five months old, Jennifer started to notice that Hadley’s eye would occasionally drift.  This “lazy eye” was very slight and only on occasion. So infrequent that …

Xander’s Glow Story

Diagnosis: Unilateral Retinoblastoma  My son was diagnosed with unilateral retinoblastoma on March 4th 2017 at the age of 8 months old after his daycare provider mentioned seeing a glow in his right eye. Xander (we call him Xan Man) began treatment immediately in Memphis Tennessee. He …

Austin’s Glow Story

Diagnosis: Bilateral Retinoblastoma  Austin was constantly getting sick and going to the doctor’s office. The doctors initially told me I was being a hypochondriac but Austin got extremely sick the night of his first birthday. We took him to the doctor’s that day and then to …

Holly’s Glow Story

Diagnosis: Retinoblastoma  Last September, Diana and her husband Bob were thrilled to welcome their second daughter, Holly, into the world.  Holly was born completely healthy, but Diana and Bob were anxious to have Holly’s eyes checked.  Holly’s three year old sister, Hannah, had been diagnosed with …