Coats' Disease

Diagnosis: Coats’ Disease Manda and her husband Bryan welcomed their fourth child, Kaydn, into the world in May of 2018.  Kaydn was born six weeks early and spent his first nine days in the neonatal intensive care unit in Sioux Falls SD.  Despite being born premature, …

Diagnosis: Coats’ Disease Christina says that during the first years of Jake’s life, he was very sensitive to light. She did not think much of this sensitivity in her son as he was very young and she thought that light sensitivity would be normal. When Jake …

Diagnosis: Coats’ Disease Melissa and her husband noticed that their son, Grant, began to develop a wandering eye when he was about three years old. Over time, this misalignment became more and more noticeable.  Concerned, they began looking for a nearby doctor to have him checked …

Diagnosis: Coats’ Disease When Miles was about 12 months old, Lauran and Barry started to notice “the Glow” in the flash photos they took of their son. He was a very active, healthy and happy little boy. Lauran and Barry had never heard of “the Glow” …

Diagnosis: Coats’ Disease This Glow Story has two parts today: one told from the unique perspective of Tristan himself and the second in his mom’s words.  Tristan’s Story from His Perspective I was at Disneyland, believe it or not, for New Year’s in 2015 going into …

Diagnosis: Coats’ Disease “Nadine, Violet has no pupil!” were the words shouted from the living room by my husband, and that was the beginning of our journey. As I ran in to the living room the lamp was shining on to Violet’s face. There was hardly …

Diagnosis: Coats Disease For a couple months, Mike and I had been noticing that Jack’s right eye was lazy at times.  When I took Jack and one of his sisters to the pediatrician for a physical at the beginning of June 2015, the pediatrician didn’t see …

Diagnosis: Coats Disease Fall 2013 was a challenging time for 9-year-old Matthew. He was finally having surgery to correct a condition that caused his foot to point inward. This surgery required Matthew to stay home from school for a few months to recover. During those weeks at home, his …

Diagnosis: Coats’ Disease In December 2016, the Fortner family moved to Fort Meade, Md., where 5-year-old Jeremiah started in a new kindergarten class. Just two weeks later, he came home with a note that would change the direction of his life. Jeremiah had failed the school …

Diagnosis: Coats’ Disease His life was forever changed the summer of 2014. Six-year old Jojo went for a routine eye exam only to discover the unthinkable. Dr. Todd Goodman in Lexington, Tenn., found something he had never seen before—what seemed to be a classic textbook case …