Stories To Inspire Us All
Diagnosis: Retinoblastoma It was a late afternoon nearly four years ago in Hanoi when Tanya found herself sitting by the window holding her 3-month-old baby girl. In that light, she noticed a glimmering glow in her baby’s eye. Tanya’s mother is a nurse and so …
Diagnosis: Retinoblastoma English This month, KnowTheGlow Co-Founder Megan Webber sat down to speak with Amanda Hernandez, a Venezuelan-Canadian mother of a Retinoblastoma survivor. Amanda, her husband, and their oldest son moved from Venezuela to Canada in 2012. In 2015, their youngest son, Santiago, was born. …
In the year 1934, Fiona Fairlie was only 18 months old. Her father was playing with her one afternoon and made a discovery that would forever change her life. There was not much information distributed in those days about childhood cancer, especially not about the …
Diagnosis: Retinoblastoma Sophia’s “Glow” was first noticed as photographs were being uploaded from our camera to the computer. She was three months old, but some of the photos had been taken a month or more prior. Photo after photo revealed a pearly white glow in her …
Diagnosis: Coats’ Disease Nurul and Rifqi live in Jakarta in beautiful Indonesia. Nurul says her son Rifqi was a very active, creative and inquisitive little boy. Growing up in Indonesia, Rifqi loved to spend his time playing video games, drawing anime and creating his own superhero …
Diagnosis: Retinoblastoma Introduction:KnowTheGlow had the opportunity to speak with Anita and Aakanksha Gupta last month—a mother and a daughter who share a common diagnosis of retinoblastoma and triumphant recovery. As you’ll read in Aakanksha’s own words, her surgery was slightly delayed due to the Covid-19 but …
Diagnosis: Familial Exudative Vitreoretinopathy Meg and Stew were very concerned to see a white reflex in the pupil of their two year old son Luca’s eye after they took photos using the flash. They were well aware that this Glow can potentially be a sign of …
Diagnosis: Coats’ Disease Maggie remembers the very first time she saw “the Glow” in her three year old son, Cameron’s, eye. She was in a dimly lit room giving him a bath. He looked up at her and for a second she noticed a flash in …
Diagnosis: Ocular Melanoma Kristy was not surprised when she received the note from her son, Calvin’s, school nurse stating that he had failed his vision test. After all, both she and her husband wear glasses. Now that Cal was 13, she assumed he would just …
Diagnosis: Retinoblastoma Kay-La Ann says she is forever grateful to her Uncle and family’s intuition. She was only 5 months old when they noticed a strange Glow in Kay-La’s eyes while the family was moving her Uncle into a new home. After this was brought to …
