Sophie’s Glow Story

Diagnosis: Retinoblastoma I was only 21 months old when my family was spending our last weekend of summer at our house in the Hamptons for Labor Day Weekend of 1997.  Over that weekend my mom started to notice a silver flash in my right pupil. The …

Aaron’s Glow Story

Diagnosis: Cataract In my infinite scrolling of the internet, I came across a story of a little boy whose grandmother noticed that his eye was reflecting white (instead of red) in pictures, and in the end, that led to the child’s diagnosis of a rare cancer …

Lucas’ Glow Story

Diagnosis: Retinoblastoma I had very worrying thoughts after noticing “the Glow” in my sons eye when taking a picture. I immediately thought my son had retinoblastoma. It didn’t matter how many times I took a picture, it would still be the same. After searching on google, …

Josie’s Glow Story

Diagnosis: Retinoblastoma Superhero Josie says she loves her new eye—and we love the story of bravery that her new eye symbolizes! An annual wellness visit showed that four-year-old Josie had vision loss in one eye, and she was quickly diagnosed with Retinoblastoma.  We are so proud …

Ethan’s Glow Story

Diagnosis: Coats’ Disease  This picture.  THIS PICTURE! If only I had known about “the glow” when I took this picture.  We had just changed the lighting in our living room the morning I took pictures for our family Christmas cards.  Why does Ethan’s eye have this …

Amber’s Glow Story

Diagnosis: Retinoblastoma  Amanda and Scott remember noticing a Glow ever so often in their daughter, Amber’s, right eye when she was as little as two weeks old.  “The Glow” would appear much as a glow appears in a cat’s eye, a yellow-greenish iridescent glow within the …

Jacksen’s Glow Story

Diagnosis: Retinoblastoma  Amanda and her husband Jack welcomed their son into the world on in September of 2017.  Jacksen was a perfectly healthy little boy and Amanda and Jack were happy to start their new family life together in their home of Kauai, Hawaii.  Looking back, Amanda …

Gage’s Glow Story

Diagnosis: Retinoblastoma  Gage was diagnosed with retinoblastoma in May of 2015. He was two years old at the time when I noticed a weird glow in his right eye. I took him to the doctor’s office three days later and they didn’t know what it was, so they …

Braelyn’s Glow Story

Diagnosis: Retinoblastoma  In March 2017, our world came crashing down when we were told our sweet 9-month-old daughter, Braelyn, was diagnosed with an eye cancer called retinoblastoma.  We scheduled an appointment with a pediatric ophthalmologist after noticing that her eyes would shake when she tried to …

Miguel’s Glow Story

Diagnosis: Coats’ Disease  Tina had no idea about any dangerous eye conditions in children nor did she know about the “glow” (leukocoria) until she posted a video and picture of her son, Miguel, on her Facebook page back in March of 2016. Her close friend messaged …