Ayden’s Glow Story

Diagnosis: Retinoblastoma A few short weeks ago, Ayden’s mother, Kristin, felt concerned with the odd coloring of Ayden’s right eye. The difference in coloring only revealed itself in some lighting. At two-years-old his eyes were tracking together appropriately and no issues were identified at the doctor’s …

Stanley’s Glow Story

Diagnosis: FEVR Stanley was born on May 15, 2014.  He was a very healthy little boy, but had some “quirky” behaviors that meant nothing at the time to his mother, Jessica.  But looking back, Jessica realizes these may have been signs of the vision issues that …

Payton’s Glow Story

Diagnosis: Retinoblastoma In July of 2014, my son, Payton was standing in my laundry room. He turned his head to the side and I noticed a glow in his right eye. I immediately had a bad feeling about it. I thought back to a story I …

Jaden’s Glow Story

Diagnosis: Retinoblastoma Alex Muñoz, Jaden’s mother, noticed a strange “Glow” in photos from the time he was just a baby.  She took many photos of him using a disposable camera with a flash, as it was before digital photography was popular.  Time and again, Alex saw …

Collin’s Glow Story

Diagnosis: Anisometropic Amblyopia When Collin was four (April 2015) we took the trip of a lifetime, to Disneyworld! He was such a big boy and rode every single roller coaster at all the parks. We stayed at a rental house with some family friends. Towards the …

Mercy Grace’s Glow Story

Diagnosis: Bilateral Congenital Cataracts Mercy Grace’s family has a long history of vision issues, mainly Bilateral Congenital Cataracts. At the time of her birth, her mother, Jessica, and her doctors were very concerned that Mercy may also have a condition to address.  They watched her very …

Shannon Rose’s Glow Story

Diagnosis: Coats’ Disease & Neovascular Glaucoma When Shannon was just two years old, her mother Rosemary started to notice that her eye was drifting. Rosemary was concerned enough to bring Shannon to an ophthalmologist for a thorough exam.  The ophthalmologist discovered Shannon had 20/200 vision in that …

Hunter’s Glow Story

Diagnosis: Coats’ Disease When Hunter was 4 months old, his granny took a flash photo of him. She noticed his right eye had a normal “red eye” that is common in a lot of pictures, but his left eye pupil had a yellowish-white glow. Granny knew …

Maxen’s Glow Story

Diagnosis: Retinoblastoma It began with some very small indicators that something was not quite right. A bit delayed smiling, habit of resting his fingers on his eyes as soon as he had control of his hands, not reaching out for things. However, it wasn’t until we …

Tristen’s Glow Story

Diagnosis: Retinoblastoma On Halloween 2013 my little 3-year-old Spiderman was having trouble with his mask. He kept moving it and we kept moving it back to straighten it. It was a wonderful Halloween for Tristen (age 3 1/2) and his little sister Dakota (4 months). When …