Marco’s Glow Story

Diagnosis: Retinoblastoma In 2006, Marco celebrated his 2nd birthday surrounded by family and friends.   Cameras began to flash as he sat in his highchair with a big piece of chocolate cake in front of him. Two of the family members celebrating with us that day were his …

Evalynn’s Glow Story

Diagnosis: Retinoblastoma Evalynn was 10-months-old when her mother, Vanessa, noticed something was “off” with her eye. When Evalynn was sleepy or focusing on something in the distance, Vanessa noticed that Evalynn’s eye would drift off slightly. This “lazy eye” was so subtle, Vanessa seemed to be …

Donovan’s Glow Story

Diagnosis: Retinoblastoma Around his fourth birthday, Donovan’s mother, Sheree, began to notice a “glow” in her son’s eye in photographs. Not knowing much about “the glow” and seeing Donovan as a healthy child, Sheree did not give it much thought. During an annual check-up in May …

Carter’s Glow Story

Diagnosis: Bilateral Retinoblastoma Emily Gillett’s own experience with eye cancer drove her to seek a second opinion when she noticed a “glow” in her son’s eye. Emily’s son, Carter Wogan, was just 3 months old when she first noticed a white “glow” in photos. She also …

Grace’s Glow Story

Diagnosis: Coats’ Disease Grace’s mother, Stacey, knew something was not right when her daughter was born.  Stacey voiced these concerns with different health care providers on numerous occasions.  Time and time again, Stacey was told that everything was fine with Grace and to give her concerns …

Colton’s Glow Story

Diagnosis: Retinoblastoma Colton Bethune’s mother, Jenny, first saw a picture from Know the Glow right after the birth of her son. Jenny had seen a similar glow in a picture of her 4-month old son, but brushed the glow off as a camera error. However, Colton …

Mikey’s Glow Story

Diagnosis: Coats’ Disease When Michael, “Mikey,” was born, a doctor checked his eyes, and everything looked perfect. In the coming months however, his mother, Dana, found something to be just a little “off” in Mikey’s photos. She could not describe exactly what she noticed, but her …

Thomas’ Glow Story

Diagnosis: Retinoblastoma The Cola Bottle Diagnostic Tool By Pat Trotta I was astounded when I found out about Know The Glow and how social media is saving lives through digital photography. Finally, we have something we can do to help children born with Retinoblastoma and other childhood …

Gracie’s Glow Story

Diagnosis: Retinoblastoma Gracie is 2-years-old. I saw a glow in her eye, but it wasn’t all the time, so I took her to a doctor on May 16, 2016. The doctor referred us to an optometrist, and later that same day, she was diagnosed with Retinoblastoma. …

Cameron’s Glow Story

Diagnosis: Norrie Disease Cameron was born at 39 weeks 6 days, weighing a healthy 8 pounds 4 ounces, and he was ready to come home hours after his birth. For the first six weeks, he had his days and nights around the wrong way and would …