Stories To Inspire Us All
Diagnosis: Retinoblastoma Sophia’s “Glow” was first noticed as photographs were being uploaded from our camera to the computer. She was three months old, but some of the photos had been taken a month or more prior. Photo after photo revealed a pearly white glow in her …
Diagnosis: Coats’ Disease Nurul and Rifqi live in Jakarta in beautiful Indonesia. Nurul says her son Rifqi was a very active, creative and inquisitive little boy. Growing up in Indonesia, Rifqi loved to spend his time playing video games, drawing anime and creating his own superhero …
Diagnosis: Retinoblastoma Introduction:KnowTheGlow had the opportunity to speak with Anita and Aakanksha Gupta last month—a mother and a daughter who share a common diagnosis of retinoblastoma and triumphant recovery. As you’ll read in Aakanksha’s own words, her surgery was slightly delayed due to the Covid-19 but …
Diagnosis: Familial Exudative Vitreoretinopathy Meg and Stew were very concerned to see a white reflex in the pupil of their two year old son Luca’s eye after they took photos using the flash. They were well aware that this Glow can potentially be a sign of …
Diagnosis: Coats’ Disease Maggie remembers the very first time she saw “the Glow” in her three year old son, Cameron’s, eye. She was in a dimly lit room giving him a bath. He looked up at her and for a second she noticed a flash in …
Diagnosis: Ocular Melanoma Kristy was not surprised when she received the note from her son, Calvin’s, school nurse stating that he had failed his vision test. After all, both she and her husband wear glasses. Now that Cal was 13, she assumed he would just …
Diagnosis: Retinoblastoma Kay-La Ann says she is forever grateful to her Uncle and family’s intuition. She was only 5 months old when they noticed a strange Glow in Kay-La’s eyes while the family was moving her Uncle into a new home. After this was brought to …
Diagnosis: Coats’ Disease It all started back in 2004, when my son Diaz was 4 years old. He was playing with his cousins at my sister’s house and my sister noticed that he was squinting. I didn’t think much about it and scheduled an appointment at …
Diagnosis: Retinoblastoma This is our hero, Walker. He is currently twenty-one months old. Walker was born with two congenital heart defects, TAPVR & ASD, and had open heart surgery at only six weeks of age. Since Walker’s repair, he has had clear echos and we are …
Diagnosis: Amblyopia During December of 2019 we started to notice that our two and a half year old son Lachlan’s eye had a slight turn. We didn’t think too much of this and decided to just watch it until after the Christmas holiday. But in January, …
