Dr. Lara Sandri spoke with KnowTheGlow’s Megan Webber and Ruth Ngaruiya about the work that has shaped her career and the future she hopes to help create for children with retinoblastoma. Based in Johannesburg, she has built a practice focused entirely on ocular oncology and …
Introducing Carlos Frias
Megan Webber, Co-Founder of KnowTheGlow, and Helene Dameris, Director of Global Outreach, reached out to Carlos Frías after seeing that Childhood Cancer International (CCI) had listed him as part of the steering committee for survivors. What followed was a conversation with a remarkable young man …
End of Year from Africa : Dec 2025
In Oct, we concluded our Digital Awareness Campaign in Ethiopia, which ran from August 15 to October 15. While the campaign was underway, the KTG team, myself and our global student ambassador Pemije Gadimoh attended the COECSA Conference in Addis Ababa, where we raised awareness …
Introducing Sameena Tabassum
I joined KTG because I strongly believe in the power of the community to raise awareness and support for rare diseases. My journey with KTG began after witnessing the impact of Retinoblastoma in my own community in a small village in India, which opened my …
Introducing Dr. Lucy Njambi
Megan Webber, Co-Founder of the nonprofit KnowTheGlow, expressed her honor at finally connecting with Dr.Lucy Njambi, a pediatric ophthalmologist and retinoblastoma specialist at Kenyatta National Hospital. Their meeting was facilitated by Ruth Ngaruiya, KnowTheGlow’s Program Manager in Africa, and included Helene Dameris, the organization’s Director …
Introducing Faraja Cancer Support Trust
When Megan Webber, Co-Founder of KnowTheGlow, joined Ruth Ngaruiya, Program Manager for Africa, and Helene Dameris, Director of Global Outreach,on a Zoom call with David Makumi, CEO of Faraja Cancer Support Trust, they were also joined by his team members including Program Manager Dr. Stephanie …
Introducing Carolyn Newman
When Megan Webber, Co-Founder of KnowTheGlow, and Helene Dameris, Director of Global Outreach, met with Carolyn Newman, they were deeply moved by the story of ACE Global. Carolyn, the organization’s Executive Director, has devoted more than 40 years to nonprofit work, and her passion for …
Introducing Amanda Van Wagner
In late September, Megan Webber, Co-Founder of KnowTheGlow, and Kait Weber, retinoblastoma parent and KTG volunteer, met with Amanda Van Wagner. Amanda, a mother herself, is a trailblazer in a new role that is beginning to gain recognition for the profound difference it can make …
Introducing Ermias Kibreab
Ermias joined the Know The Glow team in August 2025 as the Ethiopia Ambassador. His journey with retinoblastoma began when his son, Bisrat, was diagnosed with bilateral retinoblastoma at just three months old. Bisrat’s grandparents first noticed that he wasn’t tracking eye movements and insisted …
Introducing Dr. Diego Ossandón
When KnowTheGlow (KTG) Co-founder Megan Webber and Director of Global Outreach Helene Dameris sat down virtually with Dr. Diego Ossandón, they were meeting someone who has made it his life’s work to protect the vision and lives of children across Chile. Dr. Ossandón is a …