In December of 2019, I first noticed what looked like a coating across my daughter Evie’s right eye. I only noticed this when I looked at her from the side angle in the sunlight. I mentioned what I was noticing to my husband who could …
Meet Laurence Desjardins
Over the last few years, KnowTheGlow has made a concerted effort to look beyond the borders of its home base in the United States. We have learned just how important it is to take a more global perspective and have sought to find those who …
Liam Reid’s Glow Story
Diagnosis: Retinoblastoma When Liam Reid was just two years old his grandmother began noticing a strange “glow” in his eye. This glow was only visible to her in certain lighting and certain angles. However, she informed Liam’s mother, Staci of what she was noticing. At …
Meet Kerri Wilson
Kerri Wilson is a great believer in never walking past an opportunity. She has been an ocularist in Sydney, Australia for 30 years. As Megan Webber, co-founder of Know The Glow, discovered over a zoom conversation the road to becoming an ocularist was not the …
Adventures with Darian at SEE
My name is JoAnne Longtin-Rames and I am a parent to a child with Coats’ Disease. “Know the Glow” is something I am painfully aware of now although at the time when I saw it in my son’s eye in a photograph, I did not …
Meet Roger March
KnowTheGlow Co-Founder, Megan Webber, often speaks of “glow-incidences” when explaining how many families in the KTG community find their way to each other or how doctors and NGOs cross paths. This was very much the case with Megan’s most recent conversation with Roger March Alexandre. …
What Is Retinoblastoma?
What is it? Retinoblastoma is a rare eye cancer almost always diagnosed in children under 5 years old. It starts in the retina—the layer of tissue in the back of the eye that receives light—and can affect one or both eyes. Retinoblastoma is caused by …
What is Coat’s Disease?
What Is It? Coats’ disease is a very rare eye disorder where blood vessels develop abnormally in the retina. The retina is the part of the eye that transmits light images to the brain. In people with Coats’, blood vessels break open and leak fluid …
Mikey’s Glow Story
Diagnosis: Retinoblastoma Mikey’s story is a bit of a long one, and likely a bit unusual to most. Mikey is three years old and was diagnosed with retinoblastoma when he was two and a half. That is not really where his story starts though. It …