רטינובלסטומה

Written by his mother, Rachel When Nicole Barros looks at her daughter, Lyanna, she sees a bright, brave, fun-loving five-year-old who has fought through more in her short life than most could imagine. Today, Lyanna is thriving in Pre-K, full of sweetness, resilience, and a …

Written by his mother, Rachel Our little boy Lucian, just 2 years and 8 months old was full of life, energy, and joy. He showed no signs that anything was wrong. No glow in photos, no complaints, no symptoms. But one morning, under the hallway …

Zoe’s Journey: Strength, Advocacy, and Community Support When Natalie welcomed her daughter Zoe in 2003, she imagined a healthy, sheltered childhood much like her own. Just two weeks later, Natalie’s husband was deployed with the military, and she began navigating motherhood largely on her own. …

Megan Webber, Co-Founder of KnowTheGlow, and Helene Dameris, Director of Global Outreach, met with retinoblastoma survivor Viviana Palomera Venegas to hear her story. With translation provided by Pablo Allard, Vice President of Chile’s National Network of Childhood Cancer Survivors, the conversation was held as part …

When Ermias Kibreab’s son, Bisrat, was diagnosed with bilateral retinoblastoma at just a few months old, the young family was thrown into a health crisis that would challenge not only their emotional strength but also cultural expectations and access to care. Today, Bisrat is fifteen …

Sutton’s Silver Glow: A Mother’s Intuition and a Daughter’s Strength When Ashley Walley first looked into her newborn daughter Sutton’s eyes, she couldn’t shake the feeling that something was off. Sutton was just five weeks old when Ashley noticed a silver tint in one of …

A Father’s Glimpse, A Mother’s Instinct: Ta’tiyana’s Brave Journey with Retinoblastoma When Ta’tiyana was just a baby, her father began to notice something unusual, a strange glow in her eye.  It was visible only at certain angles and in certain lights. It was fleeting, easy …

In Saint Augustine, Florida, a little girl named Ellie is now seven years old and full of life!  She swims, plays baseball, practices karate, and adores her pets (including dogs, goats, chickens, and even a bearded dragon!). Her joy is infectious. Her strength is undeniable. …

When Paty Montesinos noticed her toddler’s eye drifting and his depth perception faltering, she assumed, like many parents might, that it was something simple. A lazy eye, perhaps a need for glasses. After all, her husband had worn an eye patch as a child, and …