KnowTheGlow Co-Founder, Megan Webber, often speaks of “glow-incidences” when explaining how many families in the KTG community find their way to each other or how doctors and NGOs cross paths. This was very much the case with Megan’s most recent conversation with Roger March Alexandre. …
What Is Retinoblastoma?
What is it? Retinoblastoma is a rare eye cancer almost always diagnosed in children under 5 years old. It starts in the retina—the layer of tissue in the back of the eye that receives light—and can affect one or both eyes. Retinoblastoma is caused by …
What is Coat’s Disease?
What Is It? Coats’ disease is a very rare eye disorder where blood vessels develop abnormally in the retina. The retina is the part of the eye that transmits light images to the brain. In people with Coats’, blood vessels break open and leak fluid …
Mikey’s Glow Story
Diagnosis: Retinoblastoma Mikey’s story is a bit of a long one, and likely a bit unusual to most. Mikey is three years old and was diagnosed with retinoblastoma when he was two and a half. That is not really where his story starts though. It …
Evie’s Glow Story
In December of 2019, I first noticed what looked like a coating across my daughter Evie’s right eye. I only noticed this when I looked at her from the side angle in the sunlight. I mentioned what I was noticing to my husband who could …
Christopher’s Glow Story
Diagnosis: Persistent Hyperplastic Primary Vitreous Christopher is about to turn 18, but his vision story begins when he was just four months of age. Christopher’s parents loved playing on the floor with their young infant, watching him take in the world and look all around …
Myla’s Glow Story
Diagnosis: Unilateral persistent fetal vasculature (PFV) Megan Webber had the chance to connect with Haley Hite, the amazing mother of two daughters, Maci and Myla. Haley shared the incredible journey in her home state of Ohio that led to Myla’s diagnosis. Megan marveled at how …
Lucas’s Glow Story
Know the Glow has recently had the honor of speaking with Kirsten Ramos. Kirsten shared her family’s journey to find the diagnosis for their infant son, Lucas. Back in May of 2022, Kirsten began noticing a strange glow in Lucas’ eye. The glow would become …
Know the Glow’s gift program collaboration with The Ocular Octopus – launching December 1st!
The Ocular Octopus, an educational, stuffed octopus with removable eyes, is the wonderful creation of Hillary Yeager. Children featured in the KTG Glow Gallery who have lost an eye to a glow-related eye disease will be sent this fun yellow octopus and its accompanying book …
Nash’s Glow Story
It was October 2021, and Canada was in the middle of not only a pandemic but also ophthalmologists across Ontario had decided to go on strike. Baby Nash was only 5 months old when his parents began to notice his eye looked different. The only …