Retinoblastoma

Diagnosis: Retinoblastoma My name is Jonathan Smith.  My family and I live in Brisbane, Australia.  I am the proud father of a Retinoblastoma warrior – Theadora. I am honored to be invited by “Know the Glow” to share our story, especially because the information provided …

Diagnosis: Retinoblastoma Our journey is one of perspective, persistence, hope and gratitude. This is our story. Our first child, Eloise, was born in October of 2013 – a tiny bundle who loved to be swaddled and rocked. Just after her first birthday, we began noticing …

Diagnosis: Retinoblastoma ​​We at Know the Glow had the pleasure of speaking with Rachel Mayta.  Rachel is a 31 year old Retinoblastoma survivor who bursts with energy, joy and positivity.  She is bound and determined to reach others who are navigating the world with one …

Diagnosis: Retinoblastoma When my son, Ammiel was just three months old, I noticed that there was a transparent white film on his right pupil.  Around the same time, I noticed a glow in his eye in the sunlight when he was outside of our house.  …

Diagnosis: Retinoblastoma ​​The first time Wendy saw the “flash” in her son Jasen’s eye, she thought she may have imagined it.  Jasen was just three months old and as Wendy laid him on the bed to change his clothing, the light hit his eye at …

Diagnosis: Retinoblastoma In 2004, when Grace was almost five months old, we were at my parents house preparing for my brother’s wedding. While changing Grace on the bed under the light, I noticed her left pupil did not look right. It looked almost translucent, rather …

Diagnosis: Retinoblastoma Zsolt Daniel and his wife, Mariateresa, were living in Caracas, Venezuela when Covid-19 began to spread across the globe.  They had many concerns about the welfare of their friends and family with the pandemic but were especially concerned about the health of their …

Diagnosis: Retinoblastoma Derlis says he vividly remembers the first time he noticed the Glow in his daughter Olivia’s left eye. It was November of 2019 and Olivia was just two years old. Derlis was playing indoors with Olivia when the light hit her eye as …

Diagnosis: Retinoblastoma As many in the KnowTheGlow community have come to learn, it is vitally important that you have a strong support system around you when you have a child that has been given a difficult diagnosis. Thanks to the support and compassion of Farheen …

Diagnosis: Retinoblastoma It was a late afternoon nearly four years ago in Hanoi when Tanya found herself sitting by the window holding her 3-month-old baby girl.  In that light, she noticed a glimmering glow in her baby’s eye. Tanya’s mother is a nurse and so …