Retinoblastoma

Diagnosis: Retinoblastoma When my son, Ammiel was just three months old, I noticed that there was a transparent white film on his right pupil.  Around the same time, I noticed a glow in his eye in the sunlight when he was outside of our house.  …

Diagnosis: Retinoblastoma ​​The first time Wendy saw the “flash” in her son Jasen’s eye, she thought she may have imagined it.  Jasen was just three months old and as Wendy laid him on the bed to change his clothing, the light hit his eye at …

Diagnosis: Retinoblastoma In 2004, when Grace was almost five months old, we were at my parents house preparing for my brother’s wedding. While changing Grace on the bed under the light, I noticed her left pupil did not look right. It looked almost translucent, rather …

Diagnosis: Retinoblastoma Zsolt Daniel and his wife, Mariateresa, were living in Caracas, Venezuela when Covid-19 began to spread across the globe.  They had many concerns about the welfare of their friends and family with the pandemic but were especially concerned about the health of their …

Diagnosis: Retinoblastoma Derlis says he vividly remembers the first time he noticed the Glow in his daughter Olivia’s left eye. It was November of 2019 and Olivia was just two years old. Derlis was playing indoors with Olivia when the light hit her eye as …

Diagnosis: Retinoblastoma As many in the KnowTheGlow community have come to learn, it is vitally important that you have a strong support system around you when you have a child that has been given a difficult diagnosis. Thanks to the support and compassion of Farheen …

Diagnosis: Retinoblastoma It was a late afternoon nearly four years ago in Hanoi when Tanya found herself sitting by the window holding her 3-month-old baby girl.  In that light, she noticed a glimmering glow in her baby’s eye. Tanya’s mother is a nurse and so …

Diagnosis: Retinoblastoma English This month, KnowTheGlow Co-Founder Megan Webber sat down to speak with Amanda Hernandez, a Venezuelan-Canadian mother of a Retinoblastoma survivor. Amanda, her husband, and their oldest son moved from Venezuela to Canada in 2012. In 2015, their youngest son, Santiago, was born.  …

In the year 1934, Fiona Fairlie was only 18 months old.  Her father was playing with her one afternoon and made a discovery that would forever change her life.  There was not much information distributed in those days about childhood cancer, especially not about the …

Diagnosis: Retinoblastoma Sophia’s “Glow” was first noticed as photographs were being uploaded from our camera to the computer. She was three months old, but some of the photos had been taken a month or more prior. Photo after photo revealed a pearly white glow in her …