Retinoblastoma

Diagnosis: Retinoblastoma It was a late afternoon nearly four years ago in Hanoi when Tanya found herself sitting by the window holding her 3-month-old baby girl.  In that light, she noticed a glimmering glow in her baby’s eye. Tanya’s mother is a nurse and so …

Diagnosis: Retinoblastoma English This month, KnowTheGlow Co-Founder Megan Webber sat down to speak with Amanda Hernandez, a Venezuelan-Canadian mother of a Retinoblastoma survivor. Amanda, her husband, and their oldest son moved from Venezuela to Canada in 2012. In 2015, their youngest son, Santiago, was born.  …

In the year 1934, Fiona Fairlie was only 18 months old.  Her father was playing with her one afternoon and made a discovery that would forever change her life.  There was not much information distributed in those days about childhood cancer, especially not about the …

Diagnosis: Retinoblastoma Sophia’s “Glow” was first noticed as photographs were being uploaded from our camera to the computer. She was three months old, but some of the photos had been taken a month or more prior. Photo after photo revealed a pearly white glow in her …

Diagnosis: Retinoblastoma Introduction:KnowTheGlow had the opportunity to speak with Anita and Aakanksha Gupta last month—a mother and a daughter who share a common diagnosis of retinoblastoma and triumphant recovery. As you’ll read in Aakanksha’s own words, her surgery was slightly delayed due to the Covid-19 but …

Diagnosis: Retinoblastoma Kay-La Ann says she is forever grateful to her Uncle and family’s intuition.  She was only 5 months old when they noticed a strange Glow in Kay-La’s eyes while the family was moving her Uncle into a new home. After this was brought to …

Diagnosis: Retinoblastoma This is our hero, Walker. He is currently twenty-one months old. Walker was born with two congenital heart defects, TAPVR & ASD, and had open heart surgery at only six weeks of age. Since Walker’s repair, he has had clear echos and we are …

Diagnosis: Retinoblastoma I was only 21 months old when my family was spending our last weekend of summer at our house in the Hamptons for Labor Day Weekend of 1997.  Over that weekend my mom started to notice a silver flash in my right pupil. The …

Diagnosis: Retinoblastoma I had very worrying thoughts after noticing “the Glow” in my sons eye when taking a picture. I immediately thought my son had retinoblastoma. It didn’t matter how many times I took a picture, it would still be the same. After searching on google, …

Diagnosis: Retinoblastoma Superhero Josie says she loves her new eye—and we love the story of bravery that her new eye symbolizes! An annual wellness visit showed that four-year-old Josie had vision loss in one eye, and she was quickly diagnosed with Retinoblastoma.  We are so proud …