Diagnosis: FEVR Stanley was born on May 15, 2014. He was a very healthy little boy, but had some “quirky” behaviors that meant nothing at the time to his mother, Jessica. But looking back, Jessica realizes these may have been signs of the vision issues that …
Payton’s Glow Story
Diagnosis: Retinoblastoma In July of 2014, my son, Payton was standing in my laundry room. He turned his head to the side and I noticed a glow in his right eye. I immediately had a bad feeling about it. I thought back to a story I …
Jaden’s Glow Story
Diagnosis: Retinoblastoma Alex Muñoz, Jaden’s mother, noticed a strange “Glow” in photos from the time he was just a baby. She took many photos of him using a disposable camera with a flash, as it was before digital photography was popular. Time and again, Alex saw …
Collin’s Glow Story
Diagnosis: Anisometropic Amblyopia When Collin was four (April 2015) we took the trip of a lifetime, to Disneyworld! He was such a big boy and rode every single roller coaster at all the parks. We stayed at a rental house with some family friends. Towards the …
Mercy Grace’s Glow Story
Diagnosis: Bilateral Congenital Cataracts Mercy Grace’s family has a long history of vision issues, mainly Bilateral Congenital Cataracts. At the time of her birth, her mother, Jessica, and her doctors were very concerned that Mercy may also have a condition to address. They watched her very …
La historia de Shannon Rose
Diagnóstico: Enfermedad de Coats y glaucoma neovascular Cuando Shannon tenía sólo dos años, su madre Rosemary empezó a notar que su ojo se desviaba. Rosemary se preocupó lo suficiente como para llevar a Shannon a un oftalmólogo para que la examinara a fondo. El oftalmólogo descubrió que Shannon tenía una visión de 20/200 en ese ...
Hunter’s Glow Story
Diagnosis: Coats’ Disease When Hunter was 4 months old, his granny took a flash photo of him. She noticed his right eye had a normal “red eye” that is common in a lot of pictures, but his left eye pupil had a yellowish-white glow. Granny knew …
Maxen’s Glow Story
Diagnosis: Retinoblastoma It began with some very small indicators that something was not quite right. A bit delayed smiling, habit of resting his fingers on his eyes as soon as he had control of his hands, not reaching out for things. However, it wasn’t until we …
Tristen’s Glow Story
Diagnosis: Retinoblastoma On Halloween 2013 my little 3-year-old Spiderman was having trouble with his mask. He kept moving it and we kept moving it back to straighten it. It was a wonderful Halloween for Tristen (age 3 1/2) and his little sister Dakota (4 months). When …









