Lauren joined Know the Glow in 2019 seeking information and support after her son was diagnosed with Retinoblastoma. In October of 2018, Lauren saw the glow in the left eye of her 8-month-old son, Theo. Within weeks, doctors enucleated Theo’s eye, removed 10mm of Theo’s …
Interview with Marissa Gonzalez
When speaking with Marissa Gonzalez one can’t help but be moved by the extraordinary gift of this amazing woman. Both a cancer survivor herself and an advocate helping other retinoblastoma families navigate through the storm, she has been a guiding light for so many families! …
Meet Laurence Desjardins
Over the last few years, KnowTheGlow has made a concerted effort to look beyond the borders of its home base in the United States. We have learned just how important it is to take a more global perspective and have sought to find those who …
Meet Kerri Wilson
Kerri Wilson is a great believer in never walking past an opportunity. She has been an ocularist in Sydney, Australia for 30 years. As Megan Webber, co-founder of Know The Glow, discovered over a zoom conversation the road to becoming an ocularist was not the …
Adventures with Darian at SEE
My name is JoAnne Longtin-Rames and I am a parent to a child with Coats’ Disease. “Know the Glow” is something I am painfully aware of now although at the time when I saw it in my son’s eye in a photograph, I did not …
Meet Roger March
KnowTheGlow Co-Founder, Megan Webber, often speaks of “glow-incidences” when explaining how many families in the KTG community find their way to each other or how doctors and NGOs cross paths. This was very much the case with Megan’s most recent conversation with Roger March Alexandre. …
What is Coat’s Disease?
What Is It? Coats’ disease is a very rare eye disorder where blood vessels develop abnormally in the retina. The retina is the part of the eye that transmits light images to the brain. In people with Coats’, blood vessels break open and leak fluid …
Know the Glow’s gift program collaboration with The Ocular Octopus – launching December 1st!
The Ocular Octopus, an educational, stuffed octopus with removable eyes, is the wonderful creation of Hillary Yeager. Children featured in the KTG Glow Gallery who have lost an eye to a glow-related eye disease will be sent this fun yellow octopus and its accompanying book …
Meet Dhiman Halder, KTG Ambassador
Dhiman Halder is an amazing Ambassador for Know the Glow in Bangladesh. As a professional changemaker, Dhiman has a long track record of working with organizations like BRAC, CARE, and Practical Action to realize the potential of disadvantaged people. Dhiman is the father of a …