Kerri Wilson is a great believer in never walking past an opportunity. She has been an ocularist in Sydney, Australia for 30 years. As Megan Webber, co-founder of Know The Glow, discovered over a zoom conversation the road to becoming an ocularist was not the …
Adventures with Darian at SEE
My name is JoAnne Longtin-Rames and I am a parent to a child with Coats’ Disease. “Know the Glow” is something I am painfully aware of now although at the time when I saw it in my son’s eye in a photograph, I did not …
Meet Roger March
KnowTheGlow Co-Founder, Megan Webber, often speaks of “glow-incidences” when explaining how many families in the KTG community find their way to each other or how doctors and NGOs cross paths. This was very much the case with Megan’s most recent conversation with Roger March Alexandre. …
What is Coat’s Disease?
What Is It? Coats’ disease is a very rare eye disorder where blood vessels develop abnormally in the retina. The retina is the part of the eye that transmits light images to the brain. In people with Coats’, blood vessels break open and leak fluid …
Know the Glow’s gift program collaboration with The Ocular Octopus – launching December 1st!
The Ocular Octopus, an educational, stuffed octopus with removable eyes, is the wonderful creation of Hillary Yeager. Children featured in the KTG Glow Gallery who have lost an eye to a glow-related eye disease will be sent this fun yellow octopus and its accompanying book …
Meet Dhiman Halder, KTG Ambassador
Dhiman Halder is an amazing Ambassador for Know the Glow in Bangladesh. As a professional changemaker, Dhiman has a long track record of working with organizations like BRAC, CARE, and Practical Action to realize the potential of disadvantaged people. Dhiman is the father of a …
KTG on CHVN Radio Canada
Recently, our own Christina Gill was interviewed by CHVN Radio Canada regarding the awareness campaign we are currently running in that country! She spoke about the need for awareness and education and about her personal journey with her son, Eli, who has lost an eye …
Meet Ana, KTG Ambassador
Ana Sebrek’s one woman crusade to improve vision care in Croatia began the day her son, Noa, was diagnosed with Coats’ Disease. Coats’ Disease is a very rare eye disease. Ana discovered this herself as her son was only the second patient in Croatia to seek help for …
Meet Dr. Didi Fabian
In 2017, Dr. Ido Didi Fabian had just completed a three-year fellowship in Ocular Oncology at the London School of Hygiene & Tropical Medicine. Wanting to take a deep breath and slow down his pace, he decided that he would take his family the long …