Meet Laite Tuiloma

Over the last year, KnowTheGlow has been able to reach many people around the hoping that KTG’s multiple international campaigns help families as well as healthcare professionals to heightened awareness and knowledge of the glow-related conditions that are preventable or treatable if found in time. …

Ocular Octopus Program Announcement

Know the Glow’s gift program collaboration with The Ocular Octopus is launching March 1, 2023!  The Ocular Octopus, an educational, stuffed octopus with removable eyes, is the wonderful creation of Hillary Yeager. Children featured in the KTG Glow Gallery who have lost an eye to a …

KidsVisionCheck

Gary Franklin, Bob Williams, and Alan Bush believe they can make an important contribution to the early detection of childhood vision problems with a new smartphone app they have just launched, KidsVisionCheck. Available in the App and Play Stores, it is a free vision screening …

Meet Christina Gonzalez

At age 23, Christina Gonzalez is reaching tens of thousands on her Instagram page https://www.instagram.com/gogoldforchildhoodcancer/ building awareness about Childhood Cancer!  With areas on her page dedicated to Pediatric Leukemia, Sarcoma, DIPG, and Retinoblastoma among others, Christina has found a unique way to not only build …

Meet Lauren Selvik, KTG Ambassador

Lauren joined Know the Glow in 2019 seeking information and support after her son was diagnosed with Retinoblastoma. In October of 2018, Lauren saw the glow in the left eye of her 8-month-old son, Theo. Within weeks, doctors enucleated Theo’s eye, removed 10mm of Theo’s …

Interview with Marissa Gonzalez

When speaking with Marissa Gonzalez one can’t help but be moved by the extraordinary gift of this amazing woman.  Both a cancer survivor herself and an advocate helping other retinoblastoma families navigate through the storm, she has been a guiding light for so many families!  …

Meet Laurence Desjardins

Over the last few years, KnowTheGlow has made a concerted effort to look beyond the borders of its home base in the United States.  We have learned just how important it is to take a more global perspective and have sought to find those who …

Meet Kerri Wilson

Kerri Wilson is a great believer in never walking past an opportunity. She has been an ocularist in Sydney, Australia for 30 years.  As Megan Webber, co-founder of Know The Glow, discovered over a zoom conversation the road to becoming an ocularist was not the …

Adventures with Darian at SEE

My name is JoAnne Longtin-Rames and I am a parent to a child with Coats’ Disease. “Know the Glow” is something I am painfully aware of now although at the time when I saw it in my son’s eye in a photograph, I did not …