Bella’s Glow Story

Bella O’Neill was just 3 when we took her to Specsavers for a lazy eye.  Being a young mum who would have thought 3 weeks later we would find ourselves at The Royal London Hospital seeing Dr. Reddy, hearing words that kept repeating in an …

Max Ager’s Glow Story

Max is now twelve and was diagnosed just after his 2nd birthday so his journey spans nearly a decade! When we first started the process of diagnosis we saw a specialist,  Dr. Hildebrand at The Royal Berkshire Hospital in Reading, UK. He was so lovely …

Meet Dr. Jeong-Hun Kim

In the realm of ophthalmology, the fusion of clinical expertise and scientific inquiry often leads to groundbreaking advancements. Prof. Jeong-Hun Kim, a clinician-scientist for inherited retinal disease (IRD) and retinopathy and distinguished pediatric retina specialist, serves as a Professor at Department of Biomedical Sciences & …

Amir Porter’s Glow Story

Chantal Porter says the first time she considered her 3 year old son, Amir, may have a visual issue was the summer of 2023 when her 7 year old daughter told her that she was noticing a “Glow” in her brother’s eye.  At the time, …

Macy Latif’s Glow Story

Jennifer Villamar had what she calls a “traumatic” pregnancy.  Developing Hyperemesis  Gravidarum, she suffered extreme, persistent nausea and vomiting that led to significant, life threatening weight loss.  Jennifer spent over 13 weeks in the hospital trying to control her condition with a variety of medications.  …

Colter Dammann’s Glow Story

Written by Matt & Keely Dammann (Colter’s parents) Around Colter’s first birthday we started to notice the iris of his right eye was a darker shade of blue. As the summer went on, we noticed it continue to darken compared to his left eye. Initially, …

Bella’s Glow Story

Diagnosis: Retinoblastoma Bella O’Neill was just 3 when we took her to Specsavers for a lazy eye.  Being a young mum who would have thought 3 weeks later we would find ourselves at The Royal London Hospital seeing Dr. Reddy, hearing words that kept repeating …

Aduduh Faeren Jay’s Glow Story

In an unforgettably heartfelt conversation between Megan Webber, co-founder of KnowTheGlow, and Aduduh Faeren Jay, a resilient individual hailing from the village of Sati Ikov in the Benue state of Nigeria, a profound narrative of struggle and hope unfolds. Aduduh’s story begins with his diagnosis …