Stories To Inspire Us All
Diagnosis: Persistent Fetal Vasculature Sadie was only two months old when her father, Drew, first sensed something may be impacting his daughter’s vision. Sadie’s right eye had a tendency to turn inward, especially when she was sleepy. When sharing his concerns with Sadie’s mother Ashley, who …
Diagnosis: Coats Disease Fall 2013 was a challenging time for 9-year-old Matthew. He was finally having surgery to correct a condition that caused his foot to point inward. This surgery required Matthew to stay home from school for a few months to recover. During those weeks at home, his …
Diagnosis: Bilateral Retinoblastoma Natalia Cornejo may know Retinoblastoma better than most anyone. She not only battled Retinoblastoma as a child, but faced the disease head on a second time after her son was given the very same diagnosis. Together they have fought and together they have …
Diagnosis: Coats’ Disease In December 2016, the Fortner family moved to Fort Meade, Md., where 5-year-old Jeremiah started in a new kindergarten class. Just two weeks later, he came home with a note that would change the direction of his life. Jeremiah had failed the school …
Diagnosis: Bilateral Retinoblastoma In October 2015, Leslie started to notice a strange glow in her son Parker’s eye during every day activities. Parker was only 6 months old at the time and Leslie did not know what to think of the Glow that she was noticing. …
Diagnosis: Coats’ Disease His life was forever changed the summer of 2014. Six-year old Jojo went for a routine eye exam only to discover the unthinkable. Dr. Todd Goodman in Lexington, Tenn., found something he had never seen before—what seemed to be a classic textbook case …
Diagnosis: Retinoblastoma In 2006, Marco celebrated his 2nd birthday surrounded by family and friends. Cameras began to flash as he sat in his highchair with a big piece of chocolate cake in front of him. Two of the family members celebrating with us that day were his …
Diagnosis: Retinoblastoma Evalynn was 10-months-old when her mother, Vanessa, noticed something was “off” with her eye. When Evalynn was sleepy or focusing on something in the distance, Vanessa noticed that Evalynn’s eye would drift off slightly. This “lazy eye” was so subtle, Vanessa seemed to be …
Diagnosis: Retinoblastoma Around his fourth birthday, Donovan’s mother, Sheree, began to notice a “glow” in her son’s eye in photographs. Not knowing much about “the glow” and seeing Donovan as a healthy child, Sheree did not give it much thought. During an annual check-up in May …
Diagnosis: Bilateral Retinoblastoma Emily Gillett’s own experience with eye cancer drove her to seek a second opinion when she noticed a “glow” in her son’s eye. Emily’s son, Carter Wogan, was just 3 months old when she first noticed a white “glow” in photos. She also …
