Stories To Inspire Us All
Diagnosis: Retinoblastoma Around his fourth birthday, Donovan’s mother, Sheree, began to notice a “glow” in her son’s eye in photographs. Not knowing much about “the glow” and seeing Donovan as a healthy child, Sheree did not give it much thought. During an annual check-up in May …
Diagnosis: Bilateral Retinoblastoma Emily Gillett’s own experience with eye cancer drove her to seek a second opinion when she noticed a “glow” in her son’s eye. Emily’s son, Carter Wogan, was just 3 months old when she first noticed a white “glow” in photos. She also …
Diagnosis: Coats’ Disease Grace’s mother, Stacey, knew something was not right when her daughter was born. Stacey voiced these concerns with different health care providers on numerous occasions. Time and time again, Stacey was told that everything was fine with Grace and to give her concerns …
Diagnosis: Retinoblastoma Colton Bethune’s mother, Jenny, first saw a picture from Know the Glow right after the birth of her son. Jenny had seen a similar glow in a picture of her 4-month old son, but brushed the glow off as a camera error. However, Colton …
Diagnosis: Coats’ Disease When Michael, “Mikey,” was born, a doctor checked his eyes, and everything looked perfect. In the coming months however, his mother, Dana, found something to be just a little “off” in Mikey’s photos. She could not describe exactly what she noticed, but her …
Diagnosis: Retinoblastoma The Cola Bottle Diagnostic Tool By Pat Trotta I was astounded when I found out about Know The Glow and how social media is saving lives through digital photography. Finally, we have something we can do to help children born with Retinoblastoma and other childhood …
Diagnosis: Retinoblastoma Gracie is 2-years-old. I saw a glow in her eye, but it wasn’t all the time, so I took her to a doctor on May 16, 2016. The doctor referred us to an optometrist, and later that same day, she was diagnosed with Retinoblastoma. …
Diagnosis: Norrie Disease Cameron was born at 39 weeks 6 days, weighing a healthy 8 pounds 4 ounces, and he was ready to come home hours after his birth. For the first six weeks, he had his days and nights around the wrong way and would …
Diagnosis: Coats’ Disease Leopoldo was a very happy and healthy little boy. He hit all his developmental milestones and had perfect checks at his pediatricians office. However, when he was about three years old Leo’s mother, Kristal, started to noticed that he was touching one of …
Diagnosis: Retinoblastoma Owen is a second-generation Retinoblastoma fighter. We knew that he would need to be screened from birth, so we scheduled an ophthalmology appointment before he was born. We did a blood draw at our first appointment and met with a genetic counselor who was …
