Stories To Inspire Us All
Diagnosis: Retinoblastoma I would like to introduce our story with a little background. I am a 38-year-old retinoblastoma survivor. In 1984, my mom was able to capture the glow in my right eye with flash photography. This Glow led her to discover my cancer, and …
Diagnosis: Retinoblastoma My name is Jonathan Smith. My family and I live in Brisbane, Australia. I am the proud father of a Retinoblastoma warrior – Theadora. I am honored to be invited by “Know the Glow” to share our story, especially because the information provided …
Diagnosis: Retinoblastoma Our journey is one of perspective, persistence, hope and gratitude. This is our story. Our first child, Eloise, was born in October of 2013 – a tiny bundle who loved to be swaddled and rocked. Just after her first birthday, we began noticing …
Diagnosis: Coats Disease Ana Sebrek is no different than any other mother trying to protect her child. “If I could bubble wrap my son, plus goggles and plus a helmet, I would!” she told Megan Webber, Co-Founder of KnowTheGlow. As Megan has learned from speaking …
Diagnosis: Retinoblastoma We at Know the Glow had the pleasure of speaking with Rachel Mayta. Rachel is a 31 year old Retinoblastoma survivor who bursts with energy, joy and positivity. She is bound and determined to reach others who are navigating the world with one …
Diagnosis: Retinoblastoma When my son, Ammiel was just three months old, I noticed that there was a transparent white film on his right pupil. Around the same time, I noticed a glow in his eye in the sunlight when he was outside of our house. …
Diagnosis: Retinoblastoma The first time Wendy saw the “flash” in her son Jasen’s eye, she thought she may have imagined it. Jasen was just three months old and as Wendy laid him on the bed to change his clothing, the light hit his eye at …
Diagnosis: Bi-lateral Retinoblastoma Trisha says that March 3rd of 2011 was the day their lives changed forever. Trisha’s daughter, Chloe, had seen her pediatrician a few days earlier for a scheduled nine-month well visit. At this exam her pediatrician, Dr. Draker became concerned as he …
Diagnosis: Retinoblastoma In 2004, when Grace was almost five months old, we were at my parents house preparing for my brother’s wedding. While changing Grace on the bed under the light, I noticed her left pupil did not look right. It looked almost translucent, rather …
Diagnosis: Retinoblastoma Zsolt Daniel and his wife, Mariateresa, were living in Caracas, Venezuela when Covid-19 began to spread across the globe. They had many concerns about the welfare of their friends and family with the pandemic but were especially concerned about the health of their …
