On Oct. 16 from 7 p.m. to 9 p.m. Jimmy Choo in Beverly Hills will be sparkling with more than just beautiful shoes. A wonderful gathering of women and men who care about ending childhood blindness will be at this iconic location to mark our …
Jacksen’s Glow Story
Diagnosis: Retinoblastoma Amanda and her husband Jack welcomed their son into the world on in September of 2017. Jacksen was a perfectly healthy little boy and Amanda and Jack were happy to start their new family life together in their home of Kauai, Hawaii. Looking back, Amanda …
Superheroes with designer eyes
In 2015, Holly’s love for writing and her desire to share her experiences of living with a visual impairment led to the creation of her blog, Life of a Blind Girl. Little did she know that within the next few years, she would be listed …
Gage’s Glow Story
Diagnosis: Retinoblastoma Gage was diagnosed with retinoblastoma in May of 2015. He was two years old at the time when I noticed a weird glow in his right eye. I took him to the doctor’s office three days later and they didn’t know what it was, so they …
Braelyn’s Glow Story
Diagnosis: Retinoblastoma In March 2017, our world came crashing down when we were told our sweet 9-month-old daughter, Braelyn, was diagnosed with an eye cancer called retinoblastoma. We scheduled an appointment with a pediatric ophthalmologist after noticing that her eyes would shake when she tried to …
Miguel’s Glow Story
Diagnosis: Coats’ Disease Tina had no idea about any dangerous eye conditions in children nor did she know about the “glow” (leukocoria) until she posted a video and picture of her son, Miguel, on her Facebook page back in March of 2016. Her close friend messaged …
Cannon’s Glow Story
Diagnosis: Retinoblastoma Cannon was born on October 1, 2012; perfect, healthy, and immediately spoiled by two older sisters. We did not notice anything unusual about him, nor detect anything off in pictures until January 2013. I noticed he did not track toys well and while I had “that” feeling …
Glow of the Month: Congenital Cataracts
This month, Know The Glow is highlighting congenital cataracts — specifically visually significant congenital cataracts, which affects three to four newborns per 10,000 births in the United States and is the cause of 10 percent of childhood permanent blindness worldwide. Doctors in developed countries usually …
Superheroes with designer eyes
Kristen was surprised by how perfectly her baby boy’s new prosthetic eye matched his left eye. She felt that her son was finally feeling like himself again after a heartbreaking battle with Retinoblastoma claimed his right eye. Today, superhero Jayden is a happy, talkative and …
Nolan Desmond’s Glow Story
Diagnosis: Retinoblastoma Nolan was born in February 2016, a very smiley, active, and happy baby. However, when he was just a few months old, Nolan’s parents, Matt and Brittany, began to notice that his eyes would occasionally roll backwards. He would also cry out as if …