In the year 1934, Fiona Fairlie was only 18 months old. Her father was playing with her one afternoon and made a discovery that would forever change her life. There was not much information distributed in those days about childhood cancer, especially not about the …
Sophia’s Glow Story
Diagnosis: Retinoblastoma Sophia’s “Glow” was first noticed as photographs were being uploaded from our camera to the computer. She was three months old, but some of the photos had been taken a month or more prior. Photo after photo revealed a pearly white glow in her …
Rifqi’s Glow Story
Diagnosis: Coats’ Disease Nurul and Rifqi live in Jakarta in beautiful Indonesia. Nurul says her son Rifqi was a very active, creative and inquisitive little boy. Growing up in Indonesia, Rifqi loved to spend his time playing video games, drawing anime and creating his own superhero …
Aakanksha’s Glow Story
Diagnosis: Retinoblastoma Introduction:KnowTheGlow had the opportunity to speak with Anita and Aakanksha Gupta last month—a mother and a daughter who share a common diagnosis of retinoblastoma and triumphant recovery. As you’ll read in Aakanksha’s own words, her surgery was slightly delayed due to the Covid-19 but …
Luca’s Glow Story
Diagnosis: Familial Exudative Vitreoretinopathy Meg and Stew were very concerned to see a white reflex in the pupil of their two year old son Luca’s eye after they took photos using the flash. They were well aware that this Glow can potentially be a sign of …
Welcome to Poorvi Saxena!
Posted on 2021-04-20 Know The Glow is proud to highlight the work of Poorvi Saxena from Pune, Maharashtra, India. Poorvi is a 2nd year Bachelors of Optometry student studying in Bharati Vidyapeeth Deemed University, Medical College School of Optometry in Pune. She is interested in …
Raising Awareness!
Dr. Clare Gilbert, Mr. Richard Bowman and Dr. Aeesha Malik have been diligently working to increase global awareness and early detection of blinding and even potentially deadly childhood eye diseases (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5820629/). Based in London, their collective reach spans the globe from Latin America across …
Winner of the 2020 Navarrete Family Belt Contest!
On behalf of the entire Know the Glow team, we are excited to announce that Austin is the winner of the 2nd annual “Navarrete Championship of Awareness Belt Award”! Austin is a true Superhero who is determined to share his experience fighting Retinoblastoma to …
Dr. Himika Gupta
Every Tuesday, Megan Webber, Co-Founder of KnowTheGlow, starts her day with a 6:30 am zoom call with Dr. Himika Gupta and her team as they are winding down their day at 8 pm in Mumbai, India—which means Dr. Gupta is at the end of a …
Dr. Borah of Orbis India
As the Country Director for Orbis India, you would assume that Dr. Rishi Raj Borah has an origin story similar to that of many pre-eminent advocates leading the charge in the early diagnosis and treatment of childhood blindness; but Dr. Borah’ story is more a …