Diagnosis: Norrie Disease Cameron was born at 39 weeks 6 days, weighing a healthy 8 pounds 4 ounces, and he was ready to come home hours after his birth. For the first six weeks, he had his days and nights around the wrong way and would …
Leopoldo’s Glow Story
Diagnosis: Coats’ Disease Leopoldo was a very happy and healthy little boy. He hit all his developmental milestones and had perfect checks at his pediatricians office. However, when he was about three years old Leo’s mother, Kristal, started to noticed that he was touching one of …
Owen’s Glow Story
Diagnosis: Retinoblastoma Owen is a second-generation Retinoblastoma fighter. We knew that he would need to be screened from birth, so we scheduled an ophthalmology appointment before he was born. We did a blood draw at our first appointment and met with a genetic counselor who was …
Aiden’s Glow Story
Diagnosis: Retinoblastoma It was Christmas Eve 2008; Aiden had just celebrated his 3rd birthday two weeks prior. Tim, Aiden’s father, was reading the newspaper and came across an article on Retinoblastoma and how a young child had been diagnosed by having the “white-eye reflection” picked up in …
Aubrey’s Glow Story
Diagnosis: Amblyopia Aubrey was only 11 months old when her mother, Jennifer, noticed an over-growth in the white portion of her eye. Soon after, Jennifer also noticed that Aubrey’s eye turned slightly inward. Concerned, Jennifer took Aubrey to an ophthalmologist. This doctor dismissed her concerns and said that …
Hadley’s Glow Story
Diagnosis: Retinoblastoma When Hadley was born, her mom and dad noticed some issues with the color of her right eye. Concerned, they mentioned it to their pediatrician who reassured them it was nothing to worry about. Over time, however, the issue seemed to be getting worse. …
Lizzie’s Glow Story
Diagnosis: Retinoblastoma In the days leading up to Lizzie’s three-month checkup, her mother, Sarah, began to have concerns over what appeared to be a lazy eye. Sarah felt even though Lizzie was a newborn, her eye should have been tracking better than it was. Sarah also …
Dominic’s Glow Story
Diagnosis: Coats’ Disease Lindsey was not aware of the dangers that could be associated with “The Glow” in flash photography. It was Lindsey’s sister, Olivia, who first saw a post by Know The Glow® on Facebook explaining what this golden reflection could indicate. Olivia forwarded the post …
Levi’s Glow Story
Diagnosis: Retinoblastoma When Levi was just about 2 1/2 years old he had what was thought to be a typical toddler accident. This accident was not so typical—it may have saved his life! One day in June 2015, Levi accidentally ran into the side of a table …
Baron’s Glow Story
Diagnosis: Retinoblastoma On Baron’s three month birthday, when he was 92-days-old the Yerby family was changed forever. Baron went to his pediatrician for his two month well-baby check up. In the week prior to his check up his Mom and Dad, Casey and Johnathan, noticed that …