Stories To Inspire Us All
Diagnosis: Retinoblastoma I had very worrying thoughts after noticing “the Glow” in my sons eye when taking a picture. I immediately thought my son had retinoblastoma. It didn’t matter how many times I took a picture, it would still be the same. After searching on google, …
Diagnosis: Retinoblastoma Superhero Josie says she loves her new eye—and we love the story of bravery that her new eye symbolizes! An annual wellness visit showed that four-year-old Josie had vision loss in one eye, and she was quickly diagnosed with Retinoblastoma. We are so proud …
Diagnosis: Coats’ Disease This picture. THIS PICTURE! If only I had known about “the glow” when I took this picture. We had just changed the lighting in our living room the morning I took pictures for our family Christmas cards. Why does Ethan’s eye have this …
Diagnosis: Retinoblastoma Amanda and Scott remember noticing a Glow ever so often in their daughter, Amber’s, right eye when she was as little as two weeks old. “The Glow” would appear much as a glow appears in a cat’s eye, a yellow-greenish iridescent glow within the …
Diagnosis: Retinoblastoma Amanda and her husband Jack welcomed their son into the world on in September of 2017. Jacksen was a perfectly healthy little boy and Amanda and Jack were happy to start their new family life together in their home of Kauai, Hawaii. Looking back, Amanda …
Diagnosis: Retinoblastoma Gage was diagnosed with retinoblastoma in May of 2015. He was two years old at the time when I noticed a weird glow in his right eye. I took him to the doctor’s office three days later and they didn’t know what it was, so they …
Diagnosis: Retinoblastoma In March 2017, our world came crashing down when we were told our sweet 9-month-old daughter, Braelyn, was diagnosed with an eye cancer called retinoblastoma. We scheduled an appointment with a pediatric ophthalmologist after noticing that her eyes would shake when she tried to …
Diagnosis: Coats’ Disease Tina had no idea about any dangerous eye conditions in children nor did she know about the “glow” (leukocoria) until she posted a video and picture of her son, Miguel, on her Facebook page back in March of 2016. Her close friend messaged …
Diagnosis: Retinoblastoma Cannon was born on October 1, 2012; perfect, healthy, and immediately spoiled by two older sisters. We did not notice anything unusual about him, nor detect anything off in pictures until January 2013. I noticed he did not track toys well and while I had “that” feeling …
Diagnosis: Retinoblastoma Nolan was born in February 2016, a very smiley, active, and happy baby. However, when he was just a few months old, Nolan’s parents, Matt and Brittany, began to notice that his eyes would occasionally roll backwards. He would also cry out as if …
