Diagnosis: Retinoblastoma The first time Wendy saw the “flash” in her son Jasen’s eye, she thought she may have imagined it. Jasen was just three months old and as Wendy laid him on the bed to change his clothing, the light hit his eye at …
Chloe’s Glow Story
Diagnosis: Bi-lateral Retinoblastoma Trisha says that March 3rd of 2011 was the day their lives changed forever. Trisha’s daughter, Chloe, had seen her pediatrician a few days earlier for a scheduled nine-month well visit. At this exam her pediatrician, Dr. Draker became concerned as he …
Grace’s Glow Story
Diagnosis: Retinoblastoma In 2004, when Grace was almost five months old, we were at my parents house preparing for my brother’s wedding. While changing Grace on the bed under the light, I noticed her left pupil did not look right. It looked almost translucent, rather …
Isabella’s Glow Story
Diagnosis: Retinoblastoma Zsolt Daniel and his wife, Mariateresa, were living in Caracas, Venezuela when Covid-19 began to spread across the globe. They had many concerns about the welfare of their friends and family with the pandemic but were especially concerned about the health of their …
Asher’s Glow Story
Diagnosis: Bilateral Retinoblastoma Asher was only 13 weeks old when he was diagnosed with Bilateral Retinoblastoma. In his first few weeks we knew he had visual issues, we knew there was something else going on we couldn’t put our finger on, he had other health …
Rachel’s Glow Story
The KnowTheGlow Team has recently had the pleasure of speaking with Rachel Strother. We first discovered Rachel from the documentary, “Pick of the Litter.” This fantastic documentary showcased the wonderful and rigorous world of training and matching guide dogs to their permanent homes through the …
Alonzo’s Glow Story
Diagnosis: Unilateral Retinoblastoma When Andreina Ramos received her son Alonzo’s Retinoblastoma diagnosis, she was both devastated and extremely caught off guard. Neither she nor her husband had any cancer in their family histories. When Alonzo was just two years old, his mother noticed a strange …
Myles’ Glow Story
Diagnosis: Optic Nerve Coloboma Susan and her husband were thrilled when they discovered they were expecting again. Susan says she had some concerns as she was considered an older mother at 44 and she is also diabetic. Her nerves were calmed during the course of …
Olivia’s Glow Story
Diagnosis: Retinoblastoma Derlis says he vividly remembers the first time he noticed the Glow in his daughter Olivia’s left eye. It was November of 2019 and Olivia was just two years old. Derlis was playing indoors with Olivia when the light hit her eye as …
Everett’s Glow Story
Diagnosis: Bilateral Retinoblastoma When Sierra was just three years old her mother started to notice a flash or glow in her daughter’s eye. She could see this glow with the naked eye in dimly lit rooms when the light hit it at just the right …