Stories To Inspire Us All
Diagnosis: Retinoblastoma Our daughter, Isla was diagnosed with bilateral heritable Retinoblastoma at 10 weeks of age. I first mentioned Isla’s eyes to our pediatrician while still in hospital after giving birth. I was worried the way her eyes were tracking seemed irregular and she often …
Diagnosis: Coats Disease Annie and her husband, Alain say that their now ten-year-old son Maxim is very inquisitive about life. He is a deep thinker, an investigator and a bit of a young scientist. So when Maxim came to Annie at the age of eight …
Diagnosis: Amblyopia Das ist Oskar. Er ist 3 1/2 Jahre alt und hat Amblyopie, Schwachsichtigkeit. Es betrifft sein linkes Auge. Auf diesem hat er aktuell nur 10% Sehkraft und ca. 7 Dioptrien. Für uns hat er es seit dem 28.3.22, vermutlich hat er es schon …
Diagnosis: Retinoblastoma Kelly Morton developed a strabismus (lazy eye) at a young age. She was treated with patching therapy for over a year and wore glasses to correct her misalignment. These measures were a complete success and she had no further visual issues. Later in …
Diagnosis: Retinoblastoma I would like to introduce our story with a little background. I am a 38-year-old retinoblastoma survivor. In 1984, my mom was able to capture the glow in my right eye with flash photography. This Glow led her to discover my cancer, and …
Diagnosis: Retinoblastoma My name is Jonathan Smith. My family and I live in Brisbane, Australia. I am the proud father of a Retinoblastoma warrior – Theadora. I am honored to be invited by “Know the Glow” to share our story, especially because the information provided …
Diagnosis: Retinoblastoma Our journey is one of perspective, persistence, hope and gratitude. This is our story. Our first child, Eloise, was born in October of 2013 – a tiny bundle who loved to be swaddled and rocked. Just after her first birthday, we began noticing …
Diagnosis: Coats Disease Ana Sebrek is no different than any other mother trying to protect her child. “If I could bubble wrap my son, plus goggles and plus a helmet, I would!” she told Megan Webber, Co-Founder of KnowTheGlow. As Megan has learned from speaking …
Diagnosis: Retinoblastoma We at Know the Glow had the pleasure of speaking with Rachel Mayta. Rachel is a 31 year old Retinoblastoma survivor who bursts with energy, joy and positivity. She is bound and determined to reach others who are navigating the world with one …
Diagnosis: Retinoblastoma When my son, Ammiel was just three months old, I noticed that there was a transparent white film on his right pupil. Around the same time, I noticed a glow in his eye in the sunlight when he was outside of our house. …
