Asher’s Glow Story

Diagnosis: Bilateral Retinoblastoma Asher was only 13 weeks old when he was diagnosed with Bilateral Retinoblastoma. In his first few weeks we knew he had visual issues, we knew there was something else going on we couldn’t put our finger on, he had other health …

Rachel’s Glow Story

The KnowTheGlow Team has recently had the pleasure of speaking with Rachel Strother.  We first discovered Rachel from the documentary, “Pick of the Litter.”  This fantastic documentary showcased the wonderful and rigorous world of training and matching guide dogs to their permanent homes through the …

Alonzo’s Glow Story

Diagnosis: Unilateral Retinoblastoma When Andreina Ramos received her son Alonzo’s Retinoblastoma diagnosis, she was both devastated and extremely caught off guard.  Neither she nor her husband had any cancer in their family histories.  When Alonzo was just two years old, his mother noticed a strange …

Myles’ Glow Story

Diagnosis: Optic Nerve Coloboma Susan and her husband were thrilled when they discovered they were expecting again.  Susan says she had some concerns as she was considered an older mother at 44 and she is also diabetic.  Her nerves were calmed during the course of …

Olivia’s Glow Story

Diagnosis: Retinoblastoma Derlis says he vividly remembers the first time he noticed the Glow in his daughter Olivia’s left eye. It was November of 2019 and Olivia was just two years old. Derlis was playing indoors with Olivia when the light hit her eye as …

Everett’s Glow Story

Diagnosis: Bilateral Retinoblastoma When Sierra was just three years old her mother started to notice a flash or glow in her daughter’s eye.  She could see this glow with the naked eye in dimly lit rooms when the light hit it at just the right …

Maelyn’s Glow Story

Diagnosis: Bilateral Retinoblastoma In 2009, Hien Vu left her home and her entire family in Vietnam.  She dreamed of studying in the United States and eventually moved to Arizona on a student visa where she attended college at Arizona State University.  Hien worked very hard …

Joey’s Glow Story

Diagnosis: Coats’ Disease In December 2020, Mike and Pam took their son Joey for his six year well visit.  During the exam, the doctor noticed that Joey may need glasses and sent them to see an ophthalmologist.  Not alarmed by this news, the family waited …

Fariha’s Glow Story

Diagnosis: Retinoblastoma As many in the KnowTheGlow community have come to learn, it is vitally important that you have a strong support system around you when you have a child that has been given a difficult diagnosis. Thanks to the support and compassion of Farheen …

Nixon’s Glow Story

Diagnosis: Amblyopia Kathy kept a very close watch on her two boys, always looking for signs of any visual issues.  Kathy had been treated when she was five years old for an astigmatism that led to amblyopia.  She wore glasses, and with patching therapy, was …