Diagnosis: Coats’ Disease In December 2016, the Fortner family moved to Fort Meade, Md., where 5-year-old Jeremiah started in a new kindergarten class. Just two weeks later, he came home with a note that would change the direction of his life. Jeremiah had failed the school …
Diagnosis: Bilateral Retinoblastoma In October 2015, Leslie started to notice a strange glow in her son Parker’s eye during every day activities. Parker was only 6 months old at the time and Leslie did not know what to think of the Glow that she was noticing. …
Diagnosis: Coats’ Disease His life was forever changed the summer of 2014. Six-year old Jojo went for a routine eye exam only to discover the unthinkable. Dr. Todd Goodman in Lexington, Tenn., found something he had never seen before—what seemed to be a classic textbook case …
Diagnosis: Retinoblastoma In 2006, Marco celebrated his 2nd birthday surrounded by family and friends. Cameras began to flash as he sat in his highchair with a big piece of chocolate cake in front of him. Two of the family members celebrating with us that day were his …
Diagnosis: Retinoblastoma Evalynn was 10-months-old when her mother, Vanessa, noticed something was “off” with her eye. When Evalynn was sleepy or focusing on something in the distance, Vanessa noticed that Evalynn’s eye would drift off slightly. This “lazy eye” was so subtle, Vanessa seemed to be …
Diagnosis: Retinoblastoma Around his fourth birthday, Donovan’s mother, Sheree, began to notice a “glow” in her son’s eye in photographs. Not knowing much about “the glow” and seeing Donovan as a healthy child, Sheree did not give it much thought. During an annual check-up in May …
Diagnosis: Bilateral Retinoblastoma Emily Gillett’s own experience with eye cancer drove her to seek a second opinion when she noticed a “glow” in her son’s eye. Emily’s son, Carter Wogan, was just 3 months old when she first noticed a white “glow” in photos. She also …
Diagnosis: Coats’ Disease Grace’s mother, Stacey, knew something was not right when her daughter was born. Stacey voiced these concerns with different health care providers on numerous occasions. Time and time again, Stacey was told that everything was fine with Grace and to give her concerns …
Diagnosis: Retinoblastoma Colton Bethune’s mother, Jenny, first saw a picture from Know the Glow right after the birth of her son. Jenny had seen a similar glow in a picture of her 4-month old son, but brushed the glow off as a camera error. However, Colton …
Diagnosis: Coats’ Disease When Michael, “Mikey,” was born, a doctor checked his eyes, and everything looked perfect. In the coming months however, his mother, Dana, found something to be just a little “off” in Mikey’s photos. She could not describe exactly what she noticed, but her …
