Ana Sebrek’s one woman crusade to improve vision care in Croatia began the day her son, Noa, was diagnosed with Coats’ Disease. Coats’ Disease is a very rare eye disease. Ana discovered this herself as her son was only the second patient in Croatia to seek help for …
Hana’s Glow Story
Our daughter’s glow was noticed when she was five months old. We noticed it in person only when light hit her eye at a certain angle. We were then able to see it in pictures. We took her in to see her regular pediatrician who …
Meet Dr. Didi Fabian
In 2017, Dr. Ido Didi Fabian had just completed a three-year fellowship in Ocular Oncology at the London School of Hygiene & Tropical Medicine. Wanting to take a deep breath and slow down his pace, he decided that he would take his family the long …
Jake’s Glow Story
Jake’s JourneyJake was quite likely born with retinoblastoma. His mother,Janice, took him to several doctors because Jake’s eyes wouldoften cross as an infant. The pediatricians told her that without abridge on his nose infants often cross their eyes. When he wasstill crawling, he often crashed …
Siddharta’s Glow Story
My name is Siddharta. Siddharta is the childhood name of the Buddhist God Goutam Buddha. My father gave my name after inspiring the life from Goutam Buddha. I was grown up with my family and when I was 3 God blessed with another member of …
Meet Dr. Michael Jones
Megan Webber, Co-Founder of KnowTheGlow, recently had the opportunity to “join” Dr. Michael Jones on his morning commute to work. Dr. Jones, a pediatric ophthalmologist in Sydney, Australia was driving to visit a patient family in a hospital across town and was excited to hear …
Bridge to Brisbane 2022
Last year, we at KTG shared a story about a then five year old little warrior from Queensland, Australia named Isabelle, who has Retinoblastoma diagnosis (cancer of the retina). Although she is moderately visually impaired, she does not let this disability hold her back in …
Meet KTG Ambassador, Christina Gill
Christina joined our team in January 2022 after her youngest son Eli lost his eye to advanced Coats’ Disease in September 2021. Christina first noticed the glow in Eli’s eye September 1st and learned the many conditions that could be related to the glow from …
Tamara’s Glow Story
Nasa prica je pocela sasvim slucajno, u 03. mjesecu 2022. nas mlađi sin je ozlijedio oko u igri. Kad se smirio htjela sam ga potaknuti da otvori oko pa sam rekla Tamari da mu pokaze kako jedno oko zatvori, a na drugo gleda i da …
Bruce’s Glow Story
KnowTheGlow was delighted to speak with Bruce Horak, an adult RB survivor and an accomplished artist and entertainer who has refused to let anything get in his way! Despite having only 9% of vision in his remaining eye, Bruce has worked in theater for over …