Leukocoria— Detecting “The Glow”

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Knowing “The Glow” is an essential step to preventing childhood blindness, but learning how to detect “The Glow” is just as important. “The Glow,” otherwise known as Leukocoria, is an abnormal red eye reflex that appears as a white or golden “Glow” in the pupil. …

Kitchen Daddy—Cooking with a Cause

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It was Christmas 2013. Huw and Lou Mainwaring were showing off their 5-month-old boy, Maxen, to Lou’s family in New Zealand when they discovered a “Glow” in both of Maxen’s eyes. Huw, looked online for “white eye,” “cats eyes” and the images that came up seemed …

Coat’s Monkeys

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Cozy Care for Children Battling Coats’ Disease Karen Franklin was diagnosed with Coats’ Disease at 10 years old and, as many others before social media, grew up without knowing anyone else with Coats’.  Once she joined Facebook®, she sought out Coats’ groups and read many …

Fundraising: It Takes a Village

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After a recent diagnosis of Retinoblastoma and optical nerve cancer, Ayden’s extended family realized his parents could use financial help due to mounting health care costs, time off of work and travel expenses. Without extra help, Ayden’s father had to stay home while Ayden was …

[:en]Campaign Gains Global Traction[:]

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While Nellie Chan’s daughter, Ruby, was being treated for Retinoblastoma at Children’s Hospital Los Angeles (CHLA), a doctor’s casual mention of Know the Glow® prompted her to get involved and help other parents and families find Retinoblastoma treatment. “I was getting anxious on behalf of …

The Half Helen Foundation

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Chelsea Elliott’s parents learned shortly after a preschool eye screening that their 4-year-old daughter was completely and permanently blind in her left eye. An ophthalmologist exam determined that Coats’ Disease, an ailment brought on by a viral infection, caused Chelsea’s blindness. Prior to the diagnosis, …

Why Vision Screening for Infants

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When parents bring home their new baby boy or girl, they expect to return to a pediatrician several times during the first year to ensure the baby is healthy and strong. But, quite often, doctors and parents don’t think about childhood eye exams during these …