My name is Kirsten Ramos and I work at Waianae Coast Comprehensive Health Center as a certified clinical medical assistant in the pediatric clinic. I volunteer round the clock as an area coordinator and dispatcher for Now I Lay Me Down to Sleep which does …
Karkinaki, Pefkianaki and Skoularikas Family
In a recent heartfelt and impactful conversation, Megan Webber, co-founder of KnowTheGlow, and Helene Dameris, Director of Global Outreach for KnowTheGlow (KTG), connected with several key figures from Greece who are deeply involved in the fight against pediatric cancer and retinoblastoma (RB). The triangulation of …
Clelia’s Glow Story
Story in English – Clelia’s Retinoblastoma as told by her mother: Clelia was born in Naples, Italy on a very hot night in June of 2022. To this day I remember how beautiful her eyes were, they were as blue as the sea and the …
Introducing Njoki Wachira – Development Specialist for SEVA – East Africa
In yet another move towards addressing eye health challenges in East Africa, Megan Webber and Helene Dameris met with Njoki Wachira, a dynamic development specialist working with SEVA. The introduction was facilitated by Heidi Chase of SEVA, bringing together expertise and a shared commitment to …
EURBG – 10th Annual European Retinoblastoma Meeting Group
Helene Dameris, the Director of Global Outreach for KnowTheGlow, recently attended the EURBG conference held in Athens, Greece, marking a significant gathering of experts in ocular oncology as well as other multidisciplinary fields. The conference was organized by Dr. Maria Pekianakis, an ocular oncologist based …
Grace Mbugua KTG Ambassador Update
KnowTheGlow is delighted to feature the latest adventures of one of our amazing Ambassadors to Kenya. You may remember the story of Grace Mbugua and her son Christian and their journey to care, to reach Dr. Khaki Kimani at Kenyatta National Hospital. Grace has been …
Introducing Dr. Marianne Hedlund
Megan Webber, Co-Founder of KnowTheGlow, connected with Marianne Hedlund through an introduction facilitated by Larry Wagh, who serves as the Ambassador for KnowTheGlow in India. Marianne had been in India for a few months on sabbatical and planned to continue her research in Bolivia and South …
Benny’s Glow Story
When Bennett (Benny) was just three months old, his mother, Sarah, noticed that he would not turn his head to the left. More than this, his movements seemed a bit abnormal, she describes them as “jerky”. These two symptoms were enough for Sarah to …
Michael Omotayo’s Glow Story
In a world where challenges can often define us, Michael Omotayo stands as a beacon of resilience and empowerment. From a young age, Michael has faced and conquered obstacles, shaping his experiences into lessons that inspire others to persevere and thrive. As a personal trainer …
Vicente’s Glow Story
We were awaiting our third child, Vicente, with great excitement and were thrilled when he began to open his eyes! At two months of age though I started to see a “twinkle” in the eye that was very particular and I’d not seen it in …