EURBG – 10th Annual European Retinoblastoma Meeting Group

Helene Dameris, the Director of Global Outreach for KnowTheGlow, recently attended the EURBG conference held in Athens, Greece, marking a significant gathering of experts in ocular oncology as well as other multidisciplinary fields. The conference was organized by Dr. Maria Pekianakis, an ocular oncologist based …

Grace Mbugua KTG Ambassador Update

KnowTheGlow is delighted to feature the latest adventures of one of our amazing Ambassadors to Kenya.  You may remember the story of Grace Mbugua and her son Christian and their journey to care, to reach Dr. Khaki Kimani at Kenyatta National Hospital.   Grace has been …

Introducing Dr. Marianne Hedlund

Megan Webber, Co-Founder of KnowTheGlow, connected with Marianne Hedlund through an introduction facilitated by Larry Wagh, who serves as the Ambassador for KnowTheGlow in India. Marianne had been in India for a few months on sabbatical and planned to continue her research in Bolivia and South …

Benny’s Glow Story

When Bennett (Benny) was just three months old, his mother, Sarah, noticed that he would not turn his head to the left.  More than this, his movements seemed a bit abnormal, she describes them as “jerky”.   These two symptoms were enough for Sarah to …

Michael Omotayo’s Glow Story

In a world where challenges can often define us, Michael Omotayo stands as a beacon of resilience and empowerment. From a young age, Michael has faced and conquered obstacles, shaping his experiences into lessons that inspire others to persevere and thrive. As a personal trainer …

Vicente’s Glow Story

We were awaiting our third child, Vicente, with great excitement and were thrilled when he began to open his eyes!  At two months of age though I started to see a “twinkle” in the eye that was very particular and I’d not seen it in …

Introducing Dr. Cecelia Ojabo

In the realm of healthcare, the most impactful changes often occur at the grassroots level. Dr. Cecilia Ojabo, a distinguished figure in ophthalmology and former Commissioner of Health and Human Services in Benue State, Nigeria, has dedicated her career to bridging the gap between rural …

Aurelio’s Glow Story

Diagnosis: Retinoblastoma My name is Jimena Garrido.  My husband José and I live in Lima, Peru and married in 2017.  We wished for children but decided to wait a few years to start our family. We were thrilled when our first child, Aurelio, was born …

Get to Know Dr. Marcela Zubieta

As the Regional Chair of Latin America for Childhood Cancer International, CCI, the largest patient support organization for childhood cancer, Dr. Marcela Zubieta coordinates programs and campaigns, conferences, meetings, and training for member organizations in the region to transformatively improve the experience of childhood cancer …

Meet Dr. Maria Pefkianaki

Megan Webber, co-founder of KnowTheGlow, and Helene Dameris, Director of Global Outreach, recently engaged in a pivotal conversation with Dr. Maria Pefkianaki, Director of the Ocular Oncology Service in Athens, Greece.  Dr. Pefkianaki’s journey is one of resilience, dedication, and a relentless pursuit of a …