Diagnosis: Retinoblastoma My name is Jonathan Smith. My family and I live in Brisbane, Australia. I am the proud father of a Retinoblastoma warrior – Theadora. I am honored to be invited by “Know the Glow” to share our story, especially because the information provided …
Diagnosis: Retinoblastoma Our journey is one of perspective, persistence, hope and gratitude. This is our story. Our first child, Eloise, was born in October of 2013 – a tiny bundle who loved to be swaddled and rocked. Just after her first birthday, we began noticing …
Diagnosis: Coats Disease Ana Sebrek is no different than any other mother trying to protect her child. “If I could bubble wrap my son, plus goggles and plus a helmet, I would!” she told Megan Webber, Co-Founder of KnowTheGlow. As Megan has learned from speaking …
Megan Webber, Co-Founder of KnowTheGlow, was very fortunate to capture Dr. Gary Mercado’s full attention last week as he was managing through five days of quarantine in Manila after visiting family in America. Even though struggling with jet lag and a 14 hour time change, …
In her own words, Dr. Mae Dolendo, or “Doc Mae” as she is known amongst her patients and peers, stresses that you must be tenacious when it comes to building a team of dedicated doctors, nurses, and health care providers to care for the pediatric …
Diagnosis: Retinoblastoma We at Know the Glow had the pleasure of speaking with Rachel Mayta. Rachel is a 31 year old Retinoblastoma survivor who bursts with energy, joy and positivity. She is bound and determined to reach others who are navigating the world with one …
Diagnosis: Retinoblastoma When my son, Ammiel was just three months old, I noticed that there was a transparent white film on his right pupil. Around the same time, I noticed a glow in his eye in the sunlight when he was outside of our house. …
During the pandemic, KnowTheGlow (KTG) jumped in feet first launching targeted digital social campaigns internationally, bringing its mission of building awareness to help in detecting early childhood blindness to countries around the world. As Emily Dickinson once said “Forever is composed of NOWS” and with …
Diagnosis: Retinoblastoma The first time Wendy saw the “flash” in her son Jasen’s eye, she thought she may have imagined it. Jasen was just three months old and as Wendy laid him on the bed to change his clothing, the light hit his eye at …
In 1984, Munir Ahmed, the current Country Director for Orbis Bangladesh, was looking for help with his own eyes when he came to Dhaka and met with the eye doctors of Orbis. The experience left an indelible mark on him and he immediately knew, both …
