Diagnosis: PFV When Jackson was born six years ago this December he didn’t open his eyes much the first day, and when he did, he opened his left eye more than his right eye. This worried me a little bit, but as a mom I …
Erica’s Glow Story
Erica knows all too well that her story could have ended much differently had her grandmother not voiced her concerns when Erica was just two years old. In 1996, while the family was living in New York, Erica’s grandmother noticed that her eye turned inward …
Roger’s Glow Story
Diagnosis: Retinoblastoma KnowTheGlow Co-Founder, Megan Webber, often speaks of “glow-incidences” when explaining how many families in the KTG community find their way to each other or how doctors and NGOs cross paths. This was very much the case with Megan’s most recent conversation with Roger …
KidsVisionCheck
Gary Franklin, Bob Williams, and Alan Bush believe they can make an important contribution to the early detection of childhood vision problems with a new smartphone app they have just launched, KidsVisionCheck. Available in the App and Play Stores, it is a free vision screening …
Meet Christina Gonzalez
At age 23, Christina Gonzalez is reaching tens of thousands on her Instagram page https://www.instagram.com/gogoldforchildhoodcancer/ building awareness about Childhood Cancer! With areas on her page dedicated to Pediatric Leukemia, Sarcoma, DIPG, and Retinoblastoma among others, Christina has found a unique way to not only build …
Angela’s Glow Story
Diagnosis: Retinoblastoma Alle and her boyfriend, Arturo welcomed their fourth child into the world on March 3rd, 2018. Baby Angela was completely healthy and never raised any developmental concerns for the first two years of her life. However in January of 2020 that all changed. …
Meet Lauren Selvik, KTG Ambassador
Lauren joined Know the Glow in 2019 seeking information and support after her son was diagnosed with Retinoblastoma. In October of 2018, Lauren saw the glow in the left eye of her 8-month-old son, Theo. Within weeks, doctors enucleated Theo’s eye, removed 10mm of Theo’s …
Kenna’s Glow Story
Diagnosis: Haemangioma Kenna’s Journey… When Kenna was six months old, her mother noticed a glow in Kenna’s left eye. It was not predominantly noticed in pictures. She just caught a glow in her daughter’s eye at unusual angles in the dark. She noticed it but …
Gracie’s Glow Story
Diagnosis: Retinoblastoma Last week, KTG had the chance to meet Gracie, the little girl who “kicked cancer” with her smile and inimitable character, and that’s just what her FB page reflects… https://www.facebook.com/graciesfightagainstretinoblastoma. As the page reads, “Gracie is kicking cancer’s butt!” In a conversation with …
Interview with Marissa Gonzalez
When speaking with Marissa Gonzalez one can’t help but be moved by the extraordinary gift of this amazing woman. Both a cancer survivor herself and an advocate helping other retinoblastoma families navigate through the storm, she has been a guiding light for so many families! …