It was Christmas 2013. Huw and Lou Mainwaring were showing off their 5-month-old boy, Maxen, to Lou’s family in New Zealand when they discovered a “Glow” in both of Maxen’s eyes. Huw, looked online for “white eye,” “cats eyes” and the images that came up seemed …
Coat’s Monkeys
Cozy Care for Children Battling Coats’ Disease Karen Franklin was diagnosed with Coats’ Disease at 10 years old and, as many others before social media, grew up without knowing anyone else with Coats’. Once she joined Facebook®, she sought out Coats’ groups and read many …
Fundraising: It Takes a Village
After a recent diagnosis of Retinoblastoma and optical nerve cancer, Ayden’s extended family realized his parents could use financial help due to mounting health care costs, time off of work and travel expenses. Without extra help, Ayden’s father had to stay home while Ayden was …
[:en]Campaign Gains Global Traction[:]
While Nellie Chan’s daughter, Ruby, was being treated for Retinoblastoma at Children’s Hospital Los Angeles (CHLA), a doctor’s casual mention of Know the Glow® prompted her to get involved and help other parents and families find Retinoblastoma treatment. “I was getting anxious on behalf of …
Young Retinoblastoma Survivor Shares “Blessing Bundles” Charity
Four years ago, Shenay noticed a “glow” in one of her six-month-old daughter, Violet’s eyes. She also realized she hadn’t been able to see emotion in the same eye that exhibited “The Glow.” Concerned that it could be something serious, Shenay took her daughter for …
The Half Helen Foundation
Chelsea Elliott’s parents learned shortly after a preschool eye screening that their 4-year-old daughter was completely and permanently blind in her left eye. An ophthalmologist exam determined that Coats’ Disease, an ailment brought on by a viral infection, caused Chelsea’s blindness. Prior to the diagnosis, …
White Eye Detector App Released for Android Devices
Android® users are now able to do what iPhone® users have been able to do since May 2014—scan smartphone photos for a white or yellow eye glow commonly indicative of 16 childhood eye diseases. The CRADLE app also known as the White Eye Detector is now available …
Why Vision Screening for Infants
When parents bring home their new baby boy or girl, they expect to return to a pediatrician several times during the first year to ensure the baby is healthy and strong. But, quite often, doctors and parents don’t think about childhood eye exams during these …
Specs For Little Heroes: Providing Protective Eyewear to Retinoblastoma Survivors
Specs for Little Heroes® was inspired by quite the little hero himself—Justin. At the age of three, he was diagnosed with Retinoblastoma, a rare cancer of the eyes impacting 250 to 300 U.S. children each year. An immediate enucleation of the left eye followed. After …
[INFOGRAPHIC] Shutterfly Children’s Photography Tips
Thanks to Shutterfly for sharing these great children’s photography tips. Review the infographic, and then snap some quick photos before they wiggle away. Remember … always review your children’s photos for a white or golden eye glow that could indicate one of 16 glow-related diseases.