Life, well-lived 

Posted on 2018-12-04

In November, Know The Glow received two stories from women diagnosed with retinoblastoma, one in the 1930s and the other in 1960s. Separated by a generation, both were diagnosed at 18 months of age and have gone on to live long, happy lives following having their eyes enucleated. They were eventually fitted with prosthetic eyes.

Fiona, who had her surgery in 1934, was strongly encouraged by her parents to lead a courageous life, obtaining her driver’s license, going out dancing and becoming an excellent swimmer. Now, at the age of 84, she’s still doing all of her favorite things.

Fiona as a baby

Fiona has thrived since her enucleation.

Sylvia became a cheerleader as well as a star pupil who spent a year on her own as an exchange student in Sweden.

Sylvia’s “Glow” at a young age.

Sylvia has lived a full life!


Fiona and Sylvia are resilient women who share their stories to families facing possible enucleation. Both very much want to provide parents and their children going through this terrible diagnosis with hope. With support, children can achieve their dreams and go on to live full, happy lives. They want people to know their stories to reassure parents and children.