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Gary Franklin, Bob Williams, and Alan Bush believe they can make an important contribution to the early detection of childhood vision problems with a new smartphone app they have just launched, KidsVisionCheck. Available in the App and Play Stores, it is a free vision screening …

At age 23, Christina Gonzalez is reaching tens of thousands on her Instagram page https://www.instagram.com/gogoldforchildhoodcancer/ building awareness about Childhood Cancer!  With areas on her page dedicated to Pediatric Leukemia, Sarcoma, DIPG, and Retinoblastoma among others, Christina has found a unique way to not only build …

Lauren joined Know the Glow in 2019 seeking information and support after her son was diagnosed with Retinoblastoma. In October of 2018, Lauren saw the glow in the left eye of her 8-month-old son, Theo. Within weeks, doctors enucleated Theo’s eye, removed 10mm of Theo’s …

When speaking with Marissa Gonzalez one can’t help but be moved by the extraordinary gift of this amazing woman.  Both a cancer survivor herself and an advocate helping other retinoblastoma families navigate through the storm, she has been a guiding light for so many families!  …

Over the last few years, KnowTheGlow has made a concerted effort to look beyond the borders of its home base in the United States.  We have learned just how important it is to take a more global perspective and have sought to find those who …

Kerri Wilson is a great believer in never walking past an opportunity. She has been an ocularist in Sydney, Australia for 30 years.  As Megan Webber, co-founder of Know The Glow, discovered over a zoom conversation the road to becoming an ocularist was not the …

My name is JoAnne Longtin-Rames and I am a parent to a child with Coats’ Disease. “Know the Glow” is something I am painfully aware of now although at the time when I saw it in my son’s eye in a photograph, I did not …

KnowTheGlow Co-Founder, Megan Webber, often speaks of “glow-incidences” when explaining how many families in the KTG community find their way to each other or how doctors and NGOs cross paths. This was very much the case with Megan’s most recent conversation with Roger March Alexandre.  …

What Is It? Coats’ disease is a very rare eye disorder where blood vessels develop abnormally in the retina. The retina is the part of the eye that transmits light images to the brain. In people with Coats’, blood vessels break open and leak fluid …