Brook’s Glow Story

Diagnosis: Retinoblastoma A Mother’s Determination: Catching Retinoblastoma on Film Being a vigilant parent often involves observing and documenting unusual occurrences in a child’s behavior or appearance. This is exactly what one mother did when she noticed a peculiar reflection in her son’s eye. Little did …

Katie’s Glow Story

Diagnosis: Retinoblastoma Katie Elliott: A Model of Resilience and Inspiration in the Face of Retinoblastoma Katie Elliott, a remarkable young woman hailing from Scotland, has grown to be a symbol of resilience and determination in the fight against retinoblastoma, a rare form of childhood eye …

Rai’s Glow Story

Diagnosis: Retinoblastoma When Rai was born, everything seemed to be perfect and we never imagined that his life, nor ours, would head towards an unknown journey when at 4 months a strange light appeared in Rai’s eyes. Our son is a lucky child, since thanks …

Eli’s Glow Story

Diagnosis: Retinoblastoma On Saturday, the 30th of March, little did we know our world would be turned upside down. After Eli’s favorite time of the week on Saturday when he takes swimming lessons he was so eager to race out the door. We set off …

Victor’s Glow Story

Diagnosis: Bilateral Retinoblastoma When your infant child is newly diagnosed with retinoblastoma, a parent can feel alone and as if they are in a vacuum of uncertainty.   Laura Bermejo and her husband Víctor Vázquez found themselves in this situation when their 3 ½-month-old son …

Freya’s Glow Story

Diagnosis: Retinoblastoma We at Know theGlow feel that one of the best gifts to come from TikTok is the opportunity for wonderful Glow families to bravely share their journeys while simultaneously building awareness about what to watch for in flash photography. The fact that TikTok …

Noa’s Glow Story

Diagnosis: Retinoblastoma Noa was always a very good and calm baby. Her motor development was totally advanced, always very agile and that is why we never suspected that she had any problem with her vision. When she was about one year old, I started to …

Charlotte’s Glow Story

Charlotte’s glow started when she was about 8 months old. I (her mother) started to seea reflection in her left eye when she was in her walker and the light would hit it just right. Noone else in the family could see anything at this …

The Ocularist with Singular Vision

Elisabelle St-Hilaire @Elisbellexo  Credentials: B.Sc.HSS, COO. R.B survivor, former Canadian Football League cheerleader, digital advocate and Ocularist, Elisabelle St-Hilaire shares her story with Know the Glow.  Elisabelle St-Hilaire, an ocularist from Montreal, Quebec, knew at the age of 12 that this was what she wanted …