Diagnosis: Retinoblastoma Derlis says he vividly remembers the first time he noticed the Glow in his daughter Olivia’s left eye. It was November of 2019 and Olivia was just two years old. Derlis was playing indoors with Olivia when the light hit her eye as …
Introducing Stella Matthew of Golden Butterflies, a Children’s Palliative Care Foundation in India
Last week, KnowTheGlow Co-Founder, Megan Webber, and her team sat down to speak with Co-Founder & Managing Trustee Stella Matthew of Golden Butterflies, a Children’s Palliative Care Foundation in India (Chennai -Tamilnadu). The Board of Trustees (Co-Founders) of Golden Butterflies were also present, comprised of …
Everett’s Glow Story
Diagnosis: Bilateral Retinoblastoma When Sierra was just three years old her mother started to notice a flash or glow in her daughter’s eye. She could see this glow with the naked eye in dimly lit rooms when the light hit it at just the right …
Maelyn’s Glow Story
Diagnosis: Bilateral Retinoblastoma In 2009, Hien Vu left her home and her entire family in Vietnam. She dreamed of studying in the United States and eventually moved to Arizona on a student visa where she attended college at Arizona State University. Hien worked very hard …
Introducing Monika König of Kinder Augen Krebs Stiftung (KAKS), the Children’s Eye Cancer Foundation of Germany
Last week, KnowTheGlow Co-Founder, Megan Webber, and her team sat down to speak with Monika König of Kinder Augen Krebs Stiftung (KAKS), the Children’s Eye Cancer Foundation of Germany. The organization has been doing amazing and inspirational work for 12 years focused on spreading awareness …
Joey’s Glow Story
Diagnosis: Coats’ Disease In December 2020, Mike and Pam took their son Joey for his six year well visit. During the exam, the doctor noticed that Joey may need glasses and sent them to see an ophthalmologist. Not alarmed by this news, the family waited …
Fariha’s Glow Story
Diagnosis: Retinoblastoma As many in the KnowTheGlow community have come to learn, it is vitally important that you have a strong support system around you when you have a child that has been given a difficult diagnosis. Thanks to the support and compassion of Farheen …
Interview With George Abraham, Founder & CEO of the SCORE Foundation
There are close to 5.4 million people in India who are set to be irreversibly blind. George Abraham, Founder, and CEO of the SCORE Foundation (https://scorefoundation.org.in/about-us-2/) has made it his life’s work to help the world look at people with vision challenges differently – focusing …
Nixon’s Glow Story
Diagnosis: Amblyopia Kathy kept a very close watch on her two boys, always looking for signs of any visual issues. Kathy had been treated when she was five years old for an astigmatism that led to amblyopia. She wore glasses, and with patching therapy, was …
Pooh’s Glow Story
Diagnosis: Retinoblastoma It was a late afternoon nearly four years ago in Hanoi when Tanya found herself sitting by the window holding her 3-month-old baby girl. In that light, she noticed a glimmering glow in her baby’s eye. Tanya’s mother is a nurse and so …